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In January 2016 I found out I was pregnant with our second baby and soon started to experience the all too familiar nausea and vomiting of hyperemesis gravidarum, severe vomiting in pregnancy that I had with my daughter also and which this time lead to a 10% bodyweight loss in 6 weeks (beat that weight watchers) and 10 days in hospital having iv fluids and medication. I also discovered that I had developed hypothyroidism during this pregnancy and was started on levothyroxine in order to manage...
I will be using this blog to detail my journey from pregnancy to referral to diagnosis and then through treatment and hopefully survivorship.
My hope is that this blog will not only help myself make sense out of the madness that is a cancer diagnosis but my aim is that it will also help anyone else who may be experiencing something similar as well as raise awareness of a cancer that is not often well publicised.
Friday 23 December
It's Friday 4.40 am, yesterday was ok, just a day of intravenous antibiotics, blood tests, blood pressure and temperatures, all good so far, hoping to go home today.
I really need some SLEEP!!! I am so fed up. The lady they moved who snored the worst got moved because she had an awful cough and they didn't want it spreading, but she was replaced by the loudest snorer ever.
I think in the last three nights I have had in total about five hours sleep...I need...
Wednesday 21 December
Well I've said it before I should never make plans because someone 'up there' really doesn't like me lately. Yesterday it was full steam ahead for visiting our daughters for Christmas, and today I am in hospital. Plans spoiled yet again.
I didn't feel brilliant when I went to bed last night, but as I'd just been pumped full of s**t and poison as the chemo nurse called it I really wasn't expecting to feel on top of the world but I had a terrible night,...
Tuesday 20 th December.
Well much better late than never, I got the second dose of chemotherapy this morning after Fridays postponement, the kind nurse phoned me yesterday to tell me that my neutrophils had gone up from very very low, where they had been at the 10 day stage and stayed until the second blood test, which actually turned out to be the fourth...to normal! I think she was surprised too. How did that happen?
I did give my bone marrow a damn good talking to all weekend and fed...
I wrote this last week, when I'd just had a call from the unit about an appointment I wasn't expecting. It really helped me to put it down on (virtual) paper, but I didn't feel I could post it until I knew the answer. I now know the answer, so here goes
I can't believe its been 22 days since my last blog! It feels like a lot longer.
I have spent the last few weeks rushing around trying to get organised to make mums Christmas really special this year. As well as working / cleaning / shopping. I have lost sight of the most important thing - spending actual time with mum. We were supposed to go to a Christmas event on Saturday night and I was really looking forward to spending time with her and taking some nice photos. But she was too ill to...
Hello to anyone interested, I've had nothing major to say on my recovery recently. After Ivor Lewis procedure on 3rd October, discharged on 15th October first two weeks eating was going well then at end of October started to get swallowing difficulties. I phoned hospital and was told that it was part of the healing process and too soon after the surgery to do anything. Had my follow up appointment with consultant surgeon on 25th November told me I had a 20-25% chance of survival up to 5 years. I...
I have been fighting this fight for a few years and winning I might add, but today I felt drained from the inside out, i don't know if it's the build up to christmas or work or family or all if it, but if I had a button I'd want someone to turn me off for the night, switch me on in the morning .
So it's a year on
I named my tumours the twins as there were two of them and they were growing really fast. My initial diagnosis was grim and for two months life was a whirlwind of tests, consultations, bad news, a radical hysterectomy, a wedding.....then great news my tumours were of low malignant potential. Christmas came and went. I went back to work and just muddled through trying to come to terms with it all, my new body (the scar is impressive) and the menopause, not just any menopause...
