Blogging can be a great way to journal your experiences and share with others. Why not create your own cancer journey blog, or have a read of other blogs created by our members?
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I have started, so I will continue ...
From my perspective, there is only one great basic certainty about oesophageal cancer: food is life. If my husband can't eat, he will starve.
For fellow carers, and those who have eating problems due to cancer, I hope your experience of dieticians has been better than ours. I seem to remember the only advice we were given was aimed at all cancer patients who were going through chemo, and that advice was only given when we asked to see a dietician.
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Tuesday was a good day, bringing the very best of news: the cancer hasn't spread. It is adenocarcinoma, non small cell lung cancer in its early stages. I met with my specialist cancer nurse, Michael (who is amazing), and the surgeon, Mr Jordan, who is also amazing. After reviewing my PET scan, the surgeon was keen to offer surgery and stressed that this was good, as not everyone is suitable. He told me how it would be: 2 chest drains, central line, catheter, cannulas and an epidural morphine pump;...
How to start? I think, deep down, you know, don't you? My recent feelings of living on automatic pilot – that of seeing the world from a distance, hovering on the sidelines and watching as everyone else just gets on with it; living but not quite fully. My worst fears have been confirmed – I do have lung cancer. I don't want this blog to become morose and just a diary of cancer – it is going to be my partner on this journey of downs and ups and I am determined that the ups will win....
PDT - Not a silver bullet ...
Just in case my many readers (ha, ha) think I am under the illusion that PDT is a 'cure' for inoperable oesophageal cancer - I do not. The research suggests that it is a useful palliative treatment and it seems to me to be preferable to the alternatives which are very, very few hence my probably unreasonable delight that I have found someone in this country who offers this treatment. I also believe that it can be used in conjunction with other treatment, if...
Oesophageal Cancer Stage IV - A Good Day!
Off with my list (and my husband) to the (new) GP yesterday morning. I run through what, to me, seems the particularly terrible sequence of events. The list is something like the following, with a few addiions on the way as the blood pressure was rising:
Stage IV Oesophageal Cancer - Nearly Year 2. Carrying on Blogging.
I have been spending some time roaming this site - a return visit after some failures earlier in the year. I know people are communicating with each other out there and I think I have managed to communicate with them ...but I am not sure!
And I don't think I really meant to start a blog but now I have started, I will continue and record for those people, if any, who might find 'the carer's' story of interest. ...
Bone scan came back clear! Apparently they think its arthritis in the vertebrae.
Clive went back to GP today and will be having physio for his back. I think this has encouraged him to be more active. He came down and helped me chop wood for a hour, good for blowing away the cobwebs, as it was a gorgeous day! Felt more like old times. I feel a lot better now and I think the chat with the GP did him good. its sometimes better to talk to someone who isn't too close, puts things in perspective. Anyway...
Another hospital visit done, date for admission confirmed as the 7th Dec, date for Transplant confirmed as the 16th Dec It is a relief to know that it is actually going to happen because until today we were still in limbo so to speak.
Bert met with the Psychologist today which was good as he is worried about getting to know a whole new team, He has been with his present team for 14 months and knows them all well, we were also shown around the unit which is state of the art.
My room has almost been...
