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So here I am, chemo done, radiotherapy due Nov/Dec, Herceptin only for a while and oncologist talking in preventative measures and we think surgery got it all terms. so i should be ecstatic! except that i am only now thinking 'oh my goodness I had cancer, me, cancer' it is starting to play on my mind.
when i saw my GP for a fit to work at my pace note back in March she said she would be happy to sign me right off because of the enormity of my condition and treatment. i laughed inside and...
I have written this just 3 weeks in to being told I have a rare eye cancer which will kill me..I have anything from a few months to hopefully 5 years or so if treatment works well. I will update the period leading up to this entry soon, but felt I wanted to try and hare a very difficult experience with you in the hope it helps. Please comment and ask any questions you may have. I will be with you along your journey if you ever need me. This has taken me a while to write. Firstly I would like to...
Hey gang, I'm still having real problems getting my head around the workings of this website, so it's lucky I've got a bit of time to spare just now.
Yesterday - - nearly a week after I was left in the Interview Room with my jaw hanging down to the floor - - I suddenly got a reply from My Specialist Nurse Mentor - who had been out of town on a Course. When that girl sits down to answer questions - - she goes the whole hog, and gives detailed information that is easy to understand and...
It has been a long time since my last post, partly because I did not feel I could share, and partly because things have been so hectic.
The first chemotherapy sessions of IV ifosfomide whilst halting the growth of some of the tumours did nothing to prevent new ones growing. So hubby was given a rest before they decided to try a new trial drug, which was in tablet form called axitinib, which they thought would be more suited to his lifestyle, as he was still working on through the original chemo...
I am, I guess, in quarantine for ten days or so: thank goodness for e-readers and the Internet.
So far, I think I've been fortunate. I had the docetaxel/cisplatin drips on Thursday - start of the first cycle - and have had no nausea, only hiccups (fixed by a glass of cold milk) and a spot of trapped wind indigestion (fixed with camomile tea).
I was a bit tired for a couple of days, then hit the nastiest part: a couple of nights' bad aching in my hips that nothing would touch except, marginally...
I had every faith in our large hospital, the Royal Berkshire Hospital, and praised them to anybody who would listen.
The Top Cancer Doc told me that my treatment would stop on the 6th Course. My Record Book says 9 courses. On the 6th course, another Doc told me treatment would continue because I was reacting so well (from 70 down to 10 PSA). On the 7th treatment, yet another Doc seemed surprised to see my rotten Finger and Toenails, and went away to confer with colleagues. He came back - handed...
I am so very tired of spending days terrified of what will happen in the future. More exhausting and painful than any chemotherapy, is that uncertainty that seems to come hand in hand after being diagnosed with cancer, I have suffered at the hands of ill inspected xrays, and have paid the price for said events, yet I don't want to blame my oncologist or anyone for what happened, as despite everything I know I feel like one of the lucky ones. Yet every single time it returns, every time I have to...
