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Originally published 17/4/13
Its funny, recovering in hospital, as you do, what brings the most pleasures. As my surgical recovery progresses well then I find more of my little dignities coming back. This is a very nice feeling.
I don't think that I really knew how important my independence was to me until I lost most of it. My aches and pains diminish so I don't take much pain relief now - a really nice break from recent months - my mobility improves as the swelling in my neck and jaw goes....
Originally published 16/4/13
Its been a slow, contemplative day today. It has shuffled along rather than raced. Bit like me perhaps.
God but waiting is SLOW. I have to wait for everything, my surgery has made much movement delicate processes of balancing achievements against requirements. A twist just so brings my kindle into view but pain radiates across my neck and shoulders and I have to get up, collect the damned drains and feeding machine up and make sure the tubes aren't tangled and twisted...
Originally Published 15/4/13
I don't really know how to start this one, today has been another filled with visits from family and friends which make the long and boring routine survivable.
What's hardest is that I can't do much, tubes and bottles and machines being plumbed in. I'm down a drain today, which was not painful (which I had feared). I mean the nurses here are just wonderful, they check on me so often and will help with the smallest thing. But down that road lies the royal loss all...
Originally published 14/4/13
Today has been a great day, after nearly a week since I am looking forward at life again. It has been hard working band dealing with things after having a virtually instant diagnosis from my consultant to the biopsy and scans and the final scale of the cancer being revealed to be probably not just in my tongue but also in the lymph nodes.
I had fully twenty hours of surgery and the anaesthetic recovery was bad. I couldn't sleep or rest because of a drug fuelled psychosis...
A lot better today, still feel slightly nauseaous, but no where near as bad as the past couple of days. I'm thinking maybe this is something I just need to get used to and expect each month. To be honest a couple of days, although I felt really unwell, are bearable in the long term.
Thanks for the wishes and comments, they are appreciated.
Billy
My Dad has now finished his 4 chemo sessions...so now is the waiting game
again. We find out a week on Thursday (May 16th) whether Dad can have more
treatment (maintenance chemo) or whether we just "wait for it to take its
natural course...". To say I'm scared is an understatement. I am trying to stay
positive but I know that Dad most probably will have to have a scan before they
can do anything....What if it has spread? What if the tumour in his liver has
shrunk (they said halfway...
No posts for the past couple of days as I have been very unwell.
I finished the chemo drugs on Saturday, I felt very weak for most of the day but no sickness or nausea. Sunday was a different story though. I woke at 6:30 am and straight to the bathroom, wretching into the toilet, then back to bed, this went on for the rest of the day every hour or so until 8:00 pm, I had been taking my anti sickness meds from day one and even managed to take them yesterday. I didn't eat all day and found...
12 months since rads finished , 18 months since surgeries. I am one year into hormone therapy and boy what a poopy 12 months. Joint pain, a forced menapause and all that goes with that , and most recently im on a downer with the fellow human race !! . Everyone around me has got on with their lives and seem to think things are back to normal. The only steadfast two are hubby - who struggles because he has clinical depression - so , bless him he has his own worries and usually survives in his own bubble...
So it's been quite a week.
Nothing dramatic, critical or dangerous to health and human kind as we know it but none the less there have been some trying and surprising moments.
3rd session of chemo going quite well. The common side effects are still there. Fingers, feet, lethargy, nausea after pills, small appetite. . . . Still working
Had his last capec for this session this morning so he's gone to sleep a happy bunny. Note to self - bowel movements will change in 3 days.
Doctor led oncology...
