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Family has all gone today back to their lives far away. A friend will be with me later and until I am ready to be alone again. It just gets harder every day as each da there is a little more time to think about everything that happened. It has been such a horrible three months and it has only been three months! I still can't take it all in. He was so well in July, we had a lovely cruise around Britain and I am so glad we did do that. Then from the beginning of August, doctors and hospitals and...
Hello all.
I've just had my 5th radio session. I should have been on number 7 but the machine was broken for 2 days. No obvious side effects so far (beyond a slight tenderness).
The one thing that has been a problem is that my legs or more accurately, my thighs stopped working properly a couple of weeks ago. I found that I was suddenly struggling to walk up stairs because of the difficulty in my foot reaching each step – in fact walking in general is a bit of an issue. I spoke to a doc...
Boom! Boom! Boom! No, it's not a headache but the roofers...lol. Sprung a leak in the front room after fixing the leaky roof three years ago...sigh...So, it's time to put a new one on in its entirety. Maybe we can get the contractor to fix the frame on the kitchen door that was put in new last year...another sigh...lol. No matter...we may have to move out of this lovely dwelling if we can't find a creative way of paying the mortgage once I am out on disability permanantly. At one time...
Its true what is said on here your taste doe's change. I am a cold drinker and because of the threat of my throat going into spasm, for 5 days at least I can't drink cold drinks then when I can they taste yuck. Apart from orange juice nothing tastes right. Although Last night I went out for dinner with my partner and I had a sip of his ice cold Guiness and it tasted lovely so he got me half which I enjoyed very much. My onc nurse said that I could drink alcohol but I might find that if I am...
mom had her first chemo today(thursday) she was very brave i was very proud of her.it was a long day at the hospital.mom is doing ok so far no sickness or anythink.i know its early days and we have got a long way to go i just hope that mom continues to be strong and continues to do well
During the night I had to get over to mum and dads, it all started when I called the pain clinic at the hospice as dads painkillers was not doing their job as the GPs dont seem to know much about hydromorphone I thought it was best to call the doctor that gave him the tablets, unfortunately she was off and I spoke to another doctor and told him dad was in a lot of pain he said because he did not know dad he didnt want to interfere with his tablets which I understood, he told me to call dads GP and...
Hi Mummy
You have been on my mind for days now, I cant stop thinking about you. We are back up in Ipswich only this time its not for social reasons. We are here because Baz's Grandad passed away yesterday morning from cancer too. Like Grandma he was too frail to have any treatment so they just made him comfortable and he seemed happy remembering old times and living in the past.
I didnt go to see him when we were last week, I have had enough of hospitals and hospices to last me a few years yet...
It's Wednesday, October 28th - bit of non day weatherwise (dull, grey skies with a bit of a chilly wind) reminds us of home on the Isle of Man. Andrew had quite a good night - he's now waking up every 2 hours during the night to visit the loo. His appetite is good too, eating 5 small meals a day which keeps me pretty busy either cooking or shopping. He still looks pale and wan and feeling very tired most of the time but he is in good spirits and starting to sound like his old self....
i told my little one today that the cancer has returned - she was very good bless her - the first thing she said was are they going to operate again - i told her that it wasn't an option this time - she then said 'are you going to die' - i took a big deep breath and explained to her that we couldn't say what was going to happen we have to wait for the results of the tests - i asked her if she was upset and she said no - i was shocked - she then said should i be? do you want me to be upset? i wasn...
Many of you may be aware that there is a RAGING debate occurring in the Myeloma community among patients AND medicos about doing a SCT at all. The reason for this debate is that the new novel therapy drugs "can" be used to beat back Myeloma, in a maintenance therapy sort of format. Studies are currently starting in the US to address the claims of doing this. They are collecting the patients own stem cells, in case, and then putting them on a new novel therapy cocktail, monitoring them,...
