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Thank you to all you kind people who sent me messages of support while I was in hospital. Sorry I didn't reply but it was such a pain trying to type on my tiny phone and I really didn't have the energy anyway. I came out yesterday, still feeling as weak as a kitten, unable to breathe deeply and with a neutrophil level of 1.2 (normal is >2 and neutropenia is <1). However, I am a bit better today, thank goodness. They gave me a subcutaneous injection of G-CSF on my day of departure which...
I took my wife into hospital this morning for her operation, -hip replacement. No news yet but I will telephone the ward, shortly, to find if she is out of theatre and recovering normally. Since returning home have done some useful work in the garden and some tidying up in the house. Papers sorted, put away or binned.
I continue to feel very well but I would like a good night's sleep tonight as I will not be disturbed except by my own bladder and I hope not too often by that. Ibuprofen for aches...
On 6 March, had my scan and 2nd pre RT planning meeting at UCLH. A 10.30 appointment, and I was seen within 10 minutes. A young lady nursing assistant asked me if I’d done my ‘bowel prep’. I hadn’t but had a couple of micro enemas to hand. Ten minutes later, I was good to go and then went, emptying my rectum. Having tidied me up, the next stage was having my photo taken, presumably so I could be identified easily. Curiously, no one wanted to look at my carefully recorded notes on my home practice...
It seems I forgot to update the blog yesterday or the day before, but I'm here now.
Mum has arrived (day 7) and so she accompanied me to my appointments. At the Tuesday clinic, my consultant altered when he was seeing me - originally planned for Thursday and my husband was going to come with me, but the consultant altered this and instead hijacked the clinic meeting on Tuesday. I felt initially annoyed, but this soon subsided, because I had already created my questions for him.
So, the treatment...
So the tootie fruity turned sweetcorn smell has gone. Petes appetite still been really good & in general he's not been to bad all day. He had some chest tightness which were checked by various Dr's & ecg's but no cause for concern until his temperature started going up & down. At this point they put him on iv anti-biotics. His neutrophil count has dropped from 2.8 the last 2 days to 0.6 so they expect he will become neutropenic over night. Guess this is where the real battle...
