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Well went to CAB last Friday, where we actually found out what had happened, where the CAB rang on my behalf. In their wisdom they stopped my payments when I turned 60. They admitted that I am entitled, but because they have now closed the record, I must now make a new claim. Which they are unlikely to back date the 3 months + to my birthday. Result I have lost 2 and a half months money.
Gets better, they now want all their money back 1200+, and on only 800 a month take home, that will be interesting...
I did not think I would be back here. I actually thought I was cured. I was wrong. I saw my consultant last Thursday. she told me that the dead tissue they had found was In fact a tumour. four TURBT'S IN TEN MONTH'S. six week's of radiotherapy. all a waste of time. I agreed at the outset to have my bladder removed. now they are talking about salvage surgery. the removal of my bladder. If this had been done at the outset everything else would have been avoided. the cost of the treatment's I've endured...
The phlegm has definitely reduced a lot. I haven't had to use the spitting glass all night. It's still thickish in my mouth but more saliva like in texture.
I ordered some puréed and soft meals from Wiltshire farm foods yesterday that arrive on Thursday. I did try some fish pie on Sunday and soup yesterday but it was quite hard work.
I feel as though I have less energy this week than last week. Maybe because I'm not managing to eat as much.
Was quite down yesterday, something...
Had my op on the 1st came home on the 3rd am now in bed after doing too much yesterday cos I felt so "sharp" in the morning when I got up. My remaining drain has to be less than 50 mls in 24hrs before it can come out. Is there any one else out there similar to me. I had to stand my ground to get my immediate reconstruction at the risk of needing radiotherapy and further surgery (L nodal clearance) if the left side "calcifications" come back positive.
Even this major operation...
Hi. I'm Sarah and this is my first attempt at a blog. So please bear with me!
I think I'll start from the beginning.
After a rough 6 months at the beginning of 2013 (constant bleeding and belly pain) I was diagnosed with neauroendocrine carcinoma of the cervix. It's a rare and aggresive type of cancer and it had already spread to my pelvis and lymph glands. I was in for chemo straight away, followed by radiotherapy, more chemo, brachytherapy and finally more chemo.
By January this...
