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hi first blog so bare with me is anyone online who is in remission from chondro sarcoma
Just as i feel ive stopped crying another relative rings and i have to tell them we have had more bad news , cancer has spread to hubbys brain, and their is swelling , he has almost lost all speech , and he is so upset ,bless him and all i could do was hold him as he cried , i dont think ive ever felt so sad as i do now, dr has increased steroid to try and help with swelling, and is speaking to oncologist about radiotherapy , but with so little time left and hubby being unable to leave the house...
Had first lot of chemo, and will be due nxt lot nxt Fri, was not too bad with sickness etc, but had some probs with wound under my arm, will have to wait to see if nxt lot of chemo can go ahead, fingers crossed, want to get on with it .
Arm is still numb and feels like it is swollen, so have to keep up with arm excerises, if anything else helps pls let me know x
I can't sleep!! Bob has a difficult decision to make in the next few days, that's if they can give him any more radiotherapy, we find out Tuesday. Does he go ahead and take the risk of the side effects or just stop treatment. Which ever option it's not looking good as cancer spread in his brain has become very aggressive now. It's pants and i want it to go away!!!!!!!!
I have been struggling to get my head around things over the last few weeks, I am hoping that this will help.
Me and my mum are very close and I thought the worls was going to end on Wednesday 27th January 2010.
She had not been feeling well since June 2009 and the doctors kept on telling her that she had a bladder infection and she kept on taking the antibiotics they were giving her and didn't question them. Over Christmas she wasn't herself, the bright and bubbly person who was allways game for...
Hi all
Today I had to go for my usual weekly visit for platelets - normally this is a Wednesday but I am going to Western General in Edinburgh tomorrow as I am starting a trial. I now have to get 'washed plateletes' as just before New Year I took a reaction to ordinary platelets - in that I felt my ears start to tingle and was itchy all over - within seconds my ears had swollen up (I looked like Dumbo) and I had this horrible itchy rash all over - I could also feel my face and lips start to swell...
Well had my quarterly visit to Western and an older BCR-ABL test came back, the counts are doubling every 3 months. She raised concerns and had more tests done. Got a letter in the post, bcr-abl counts on the rise. How strange is that, having been on glivac for 7 years, and a higher dose over the last 2 years, surely it should come down? Had major panic and imagined all sorts of horrors, and bizarrely started with all sorts of unusual side effects, including a rather large tummy, I look pregnant. Thankfully...
Yesterday Bert slept all day , in fact he has been sleeping most of the time since Saturday. but he awoke a little aggressive again,so had to be sedated again. Today he woke with a temp and his catheter was blocked so he was in agony. after yet more morphine as he threatened to start throwing things about I have noticed that that aggression gets much worse when he is in pain, They took the catheter out for a while and he managed to go without the pain. But he is asleep again. We are still hoping...
My dearest maureen it is 6 months today 9 febuary that you were taken from me it only seems like yesterday that you and i were together, i miss you terribly my darling evenings are very lonly without you i think about the weekends when we used to go out and vist places, every day you are with me in my thoughts, one day we will be together again God bless you my darling i love you always forever. your loving Husband Rick.
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