Well had my quarterly visit to Western and an older BCR-ABL test came back, the counts are doubling every 3 months. She raised concerns and had more tests done. Got a letter in the post, bcr-abl counts on the rise. How strange is that, having been on glivac for 7 years, and a higher dose over the last 2 years, surely it should come down? Had major panic and imagined all sorts of horrors, and bizarrely started with all sorts…
Been offline for a while, had my ups and downs and needed loads of sleep.
I have just been to visit my folks back in SA which was really great, was feeling better than I had in months. Same week I returned I had a appointment at Haematology. My BCR-ABL seems to be slowly on the rise. All my specialist said was that we may have to change treatment.
24 hours later I was in a spin, have read far too many research updates…
Thank-you for the kind support and cyber hugs, I really needed it. Saw the GP last night purely for a BP test. Broke down in tears and begged for time off work. He very kindly gave me a flu jab, upped my anti-depressants and booked me off till Monday.
Must say staying in bed till midday was bliss, had to get up to fetch the two doggies I am looking after for the next few days. Let's hope they understand my lack of energy…
I am so tired again, all I can think about is climbing back into bed. I am sore and uncomfortable, or am I simply just feeling sorry for myself. I just can't pick myself up and am feeling pretty lonely as there is no one to hold me close and tell me it's gonna be okay...
