Hi all
Today I had to go for my usual weekly visit for platelets - normally this is a Wednesday but I am going to Western General in Edinburgh tomorrow as I am starting a trial. I now have to get 'washed plateletes' as just before New Year I took a reaction to ordinary platelets - in that I felt my ears start to tingle and was itchy all over - within seconds my ears had swollen up (I looked like Dumbo) and I had this horrible itchy rash all over - I could also feel my face and lips start to swell up. They immediately switched the infusion off and I had three doctors standing over me (just like Holby I thought}. After some hydrocortisone and piriton thimgs started to settle down although my ears took until tea time to go back to normal!
Two of the regulars at the day unit - I noticed seemed very poorly compared to how they had been recently - which made me realise that I could also quickly start to go down - wee bit scary. Anyway came home and went for a walk along the promendade which was very uplifting and tomorrow I go and see the specialist to prepare for this new treatment I am about to start. This involves another bone marrow aspiration (such fun) and loads of blood - ECG and echocardiogram - can't wait.
It was funny when this morning I received the phone call from the hospital to tell me platelets had arrived - last year at this time it was phone calls to tell me about shoes or handbags that had arrived or an appointment confirmed at the hairdresser or beauty parlour - My God how things change eh?
