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so I had my results fro my second lot of Sirtex treatment, but it ended up being more about what else had happened since then.
Turns out that whilst the radiation seems to have worked very well on at least some of the tumours in my liver, the chemo (irinotecan specifically) has stopped working entirely between the 2 lots of scans which were only really 8 or 9 weeks apart. I now have over 10 tumours in each lung, where I had none before. To say I was shocked to hear that is an understatement. That...
My partner had his op on 23rd July. They were only able to remove 2 of the nodes. (They had planned to remove 4) he was discharged less than 24 hrs later into my care. None of his wounds were dressed. He had no disharge information (no post operative care) we are now waiting to hear about any follow up treatment. Is this "normal".
My mum's first consultation with an oncologist that specializes in her kind of cancer is tomorrow. Mum has a rare cancer called Pseudomyxoma peritonei so rare in fact that your chances of getting it are 1 in 1,000,000. Problem is because its so rare there are only 2 hospitals in the UK that can deal with mum one in Manchester and one in Basingstoke so our closest is Basingstoke about 55 miles away. She wants me to go with her and its silly but I am catching myself trying to gain power over something...
My partner was treated last week with clofarabine and cytarabine and poor guy seemed to have every side effect going. Unfortunately, the staff aren't familiar with the side effects of these drugs. My partner thought he was a goner, he got Acute Inflammatory Response (soaring temperature, sweats) from one and the flu like symptoms of the other. After five days he got hand-foot syndrome. Thanks to the MacMillan treatment information I could see that he was having side effects but the staff kept...
Off to meet someone (chemotherapy nurse perhaps - starting to lose track of who does what when!) tomorrow to talk about the chemotherapy course I will be taking to complement the radiotherapy. It is an oral dose so I think I'll be bringing the medication home with me.
I say 'home' but actually we are on holiday this week so I'm traveling over from Center Parcs. It's not ideal because we've decided it is better for B to stay with the girls rather than come with me. This appointment...
Hi to all,
Following my last post, I have now got holiday insurance with The Nationwide and all very simple on line.
So now all I have to do is get excited, not had any sort of holiday for 7 yrs. Before I was diag with bc, my hubby was very ill.
Thank you all again for your help and advice.
Take care all.
Vee.xxx
Well what a day!!!!
Today mum has had blood tests, x-rays, ecg's and ultrasounds.
Blood tests have come back that her blood count is low at the moment and put the number 60 (whatever that's meant to mean) on it. Apparntly if it drops as low as 10 or if she starts showing signs of any infection they will do a blood transfusion.
Because of her low blood count now she needs to be extra careful not to pick up any infections of any kind.
I think now the seriousness of having a demolished immune system...
Tomorrow it will be 6 years since my Mum died. I was upset at the time but got over things pretty quickly as she was 92 and just went to sleep. Also I had my own family and was very wrapped up with them. Last year when Seve got ill I broke down and told my daughter that I wanted my mum to put her arms around me and just cuddle me. I think she was a bit shocked to see a 58 year old want her Mum!! Steve died in November last year and having read Jenni's blog about how things were this time last year...
I lost my hubby paul last september. I miss him so much. It haunts me more now of the terrible pain he suffered and his fight to stay alive then it did when we was living through it .
Is there anybody out there like me / Paul was 54 when he died. he had lung that spread to his bone cancer. In the end it was every where. he lived just a few days under a year from diagnosis.
It was the most dreadfull and sole destroying time of my life . Plus I nursed my dad who lived 6 months after being diagnosed...
I came home from hospital yesterday from having a liver resection & gallbladder removal.....very sore & painful but apparently op was successful....anyone have any experience in this area?
sarah
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