new news, good and bad

1 minute read time.

so I had my results fro my second lot of Sirtex treatment, but it ended up being more about what else had happened since then.

Turns out that whilst the radiation seems to have worked very well on at least some of the tumours in my liver, the chemo (irinotecan specifically) has stopped working entirely between the 2 lots of scans which were only really 8 or 9 weeks apart. I now have over 10 tumours in each lung, where I had none before. To say I was shocked to hear that is an understatement. That wasn't part of the equation. 

So I had no chemo this week as my Oncologist s away and we need to talk about what they are gonna try with me next to deal with this. 

I just can't believe that my Liver is finally heading in the right direction only for this to happen. my mum was already convinced it must have spread as I have been so unwell over the last couple of months now. The 2 aren't actually connected as the doc said I wouldn't have felt much of a difference if at all, the fluid and nausea etc are more of a coincidence, but that's how she worked it out in her head and who can blame her. 

I just want to get better and that light at the end of the tunnel just seems to keep going out on me.

Am hopefully going away this weekend with a friend to the coast to get away from it, hoping it will be nice an sunny, but as long as i can chill and not think about it for a bit that will be enough for me.

 

Anonymous
  • FormerMember
    FormerMember

    Hi Michy,

    Not having a pleasant time.Never mind what your Mum says its the Medical team need to be answering the questions. Forget how things are at the moment I know thats easy to say but try.

    Go away with your friend to the coast and when you get back. You can sort the Oncoligist out when he comes back.All the best.

    Take care and be safe Big Hugs Love Sarsfield.xxx

  • FormerMember
    FormerMember

    Hi Michy,

    Sorry I haven't met you before, I have been on this site since Nov 08 when I was diagnosed with bowel cancer with liver and lung mets.I had some chemo (oxali +capecitabine) then surgery on bowel and liver which went really well. I then had cape only to try to shrink the lung tumours but to no effect. I only had one to start with but after the cape I had 4, so I then had 5FU- no shrinkage and 10% growth. I now have 6 across both lungs. I am about to start irinotecan and am really worried about hair loss-how stupid am I? I should be worrying about losing my life but the hair thing freaks me out. I think the light has gone out at the end of my tunnel.

    I never had any symptoms except constipation and bleeding about 4-6 weeks before my diagnosis and I have never had a days illness during my treatment.

    You look very young in your picture, I hope the treatment starts working again or they find something else for you.

    Have a lovely weekend and hope you can fill your head with good thoughts.

    Please let me know how you get on.

    Love Jen XX

  • FormerMember
    FormerMember

    Go and enjoy your weekend love and chill out. That light may seem a bit dull at the moment, but never give up, see what your onc comes up with. love Carol x

  • FormerMember
    FormerMember

    thank you all you lovely, lovely people. You're the only ones that can really understand what this is all like.

    Hope you're all coping well. I will try my best to not think too much this weekend, need to just get away from this nonsense.

    love you all xxx