My beloved husband died on 15 August 2010. He fought like a tiger and we were so proud of him. The day before he died we got married. We had a lovely day, he found it quite tiring but I know he had a lovely day and enjoyed seeing our friends and family all together. The next morning he started to deteriorate very quickly. We were warned that this could happen but thought it meant over a few days, not 12 hours.
I don…
We were told the bad news that the chemo hadn't worked again, although we are getting a second opinion hopefully, to be honest I am not hopeful. The prof is a good doctor, he has tried everything.
My partner is now a wheelchair user. He is going to come home for as long as possible, if he gets an infection that will be the end. If we are lucky he has weeks.
Don't think I'll be blogging for a while, gonna be busy…
My partner was treated last week with clofarabine and cytarabine and poor guy seemed to have every side effect going. Unfortunately, the staff aren't familiar with the side effects of these drugs. My partner thought he was a goner, he got Acute Inflammatory Response (soaring temperature, sweats) from one and the flu like symptoms of the other. After five days he got hand-foot syndrome. Thanks to the MacMillan treatment…
Today, after the anxiety about my partner's mood last night, I was quite drained, I had difficulty getting to sleep, just lay there praying for a miracle. He asked me to bring our sons to see him, in case he gets worse. I arranged for us to meet him in the Day Clinic after hours and it was strange to see it so empty when it is usually packed out. To be honest, I find it difficult to go with my partner when he had…
Partner is very poorly. He may be transferred to HDU. He is very frightened that the side effects are a sign that he is going to die. He is extremely tired, may have an infection (or it could be 'acute inflammatory response'), is unable to eat. It is awful to see him like this, I am scared too.
I phoned his nurse and she was reassuring but has suggested that I get our sons in to see him. I feel very anxious but…
