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I just wanted to see it in writing what a "normal" week we have had, well just over a week......
It started last Friday 2nd Sept, it was our old friends funeral.....actually a day of celebration as lots of people came, people that we have known for over 35yrs.......don't need to explain about funerals and meeting up with long lost friends. We hadn't been to a funeral since the death of Daves brother just before his diagnosis so were both a bit apprehensive, me more so as it always brings...
Mo had a bad day today even though she slept all night from 9.30pm-6.30pm without getting up she woke up with pain in her head,belly and legs,bless! She had her meds this morning,9 tablets all told same as every morning after a piece of toast,not a lot for brkfast. After her meds she usually has a rest for an hour or two then I help her get washed & dressed. Today though she spent the rest of the day until 2-2.30ish in bed which is unusual for her. The only reason she got up was because her son...
Lurched out of bed at 5.40am, managed to get one 6 yr old and two 13 yr olds out of the house by 6.40 in time to get on a bus at 6.50, all excitedly off to legoland.
Back to bed then for me til 9.30, then lay on sofa drinking tea. Managed to get my glad rags on in time to meet my friend L for lunch... baguettes and chips yumyum! Then we drifted about the village and peered into various shops, and then I found what I have been after for weeks - a mac. LOL! I have winter coat, wool coats, cardigans...
Rang the St Michaels hospice helpline this morning didn'y go well.I was trying to arrange for someone to come to the bungalow & give Mo a wash,probably hasnt had a 'proper' wash in a week,she tries but its hard.Hopefully they could wash her hair also as i was worried about doing it myself because of the biopsy scarring.The person i spoke to,whether it was intentional or not,said something along the lines about the service only being available to 'end of life' patients.You have to be aware,Mo was...
New to site & looking for as much info/similar experiences/suggestions. Family member diagnosed 6 weeks ago with grade 4 kidney cancer. He is 70, has high blood pressure (controlled by medication), a pacemaker to regulate his atrial fibrilation. Had one cancerous kidney removed 15 years ago (without complications or need of any other treatment/medication) and subsequently had yearly checks for a period of 10 years where no further sign of cancer appeared.
However, at Easter of this year he...
That is all I have done today. Well, not literally, otherwise I would be sat here having not got dressed or gone to work or eaten or used the loo... :) AND, I have been on tenterhooks until could get onto my laptop this evening and see what LM's results were - PHEW!! (HUGS LM TIGHTLY)
But yes, yawning took up a large amount of my time. So, why stay in work I hear you cry? I asked myself that and the response was, they are giving you 3 days off a fortnight so TRY to go in when you can to...
I have not had a bad day. In fact i have felt quite normal at times. I am trying to stay positive.
However, there are times in the day when I just feel alone. Even in a room full of people and family - I am in my own world - I have to deal with this and my thoughts.
I think the gap between being told there might be a problem and when you go to see someone seems like forever. This is a kind of limbo - not that I intend on doing the limbo - I am not that flexible anymore!
So I stay here in limbo...
Nige been out 3 weeks now !!! He doing really well white cell count normal platletts over a hundred !!! :) x Line was removed on Wednsday he said it hurt more coming out than going in but is all ok !!!
just waiting for the 3 month scan to see if stem cell has worked already over a month post stem cell so not much longer to wait now :) x
love to all
Maxine xxxxx
My mum asked me a strange question yesterday "Did I want to marry Mo?".I told her that it wasn't what I wanted and not on my priority list,Mo is my priority even more so now.I didn't want to be one of those people who have just found out their girlfriend or partner has a terminal illness and thinks "I know what i'll do we will get married" regardless of how many years they have already been together and its never been a issue.No, thats not how Mo & I roll we wouldnt want to get married as the ultimate...
Yesterday evening Mo became very tearful and emotional,never seen her like that til now.Normally she is so strong,she will have a good grizzle clocking up the tissues/kitchen twl usage then stop & then its all over.Nothing worse than sitting in another room watching tv, doing normal things & then suddenly hearing someone you love so much crying their eyes out.of course you go in and give them a big hug and a kiss,and then you ask them why they are crying but they are unable to tell you why.Occasionally...
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