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Hi everyone--my first ever blog and blog post!!
Joining a community online for whatever reason is something I always find challenging as following the seemingly idiot proof instructions on how to register and participate in that community usually involves having to overcome several mental blocks because for some reason I often fail to see the obvious.
What is simple and staightforward for many really is very difficult for others--unless it's broken down into child like instructions and numbered...
After my recent secondary diagnosis, at 28, I decided to write a blog about my experience. I hope it can give an insight into living with cancer and also help those who are suffering from the disease by sharing my experience. Thanks for reading.
http://writtenoff.net/
After finally returning to work 3 months after my first plaque therapy treatment, a second tumour diagnosed, and yet more radiotherapy treatment. Another 8 weeks off work and have to go back. Really not looking forward to returning to work, my eye still painful but at least I have a job to go back to! Please let this be the last radiotherapy treatment - next step is removal of my eye if it doesn't work. I can't bear to think about that
Ugh... chemo is yuk. day 6. 8 days more of thees tablets + i can hav a rest. Fink the anti-sickness r finly workin. But my tummy is sor from bein sik + so is my froat, so wen i cough it herts a lot. Got my haircut today tho, kept getin in my way wen bein sik!
Barts hav agreed to c me... no promis of gamma but step in the riyt way.
I feel lyk all i do is sleep... am so tiyrd.
I hayt chemo.... it beta b workin coz i gotta do 5 mor of thees cycles, wiv a chemo spine injection nex tym... owch.
Gotta...
Hi
Two weeks ago I was diagnosed with Transitional Cell Carcinoma, and informed I would have my left kidney removed. I am still in shock and am finding it difficult to find much written about TCC. At the time of the surgery my consultant said that my paraortic lymph nodes were enlarged and removed, this was all intially equally worrying, but he has since said the cancer did not spread to these. I have a meeting with an Oncologist on Monday and feel very nervous, this is the beginning of a journey...
Ha ha ha.. can't get rid of me that easily.... ! Ok, I know I said bye already... but... you know me.... and Tigghogg was getting up a petition and I was worried it might be misread and you'll petition for Wing Commander John and Colonel Christine to not let me back in again....and...
Just need to say a few things...(again)
1.Am I ready?
Well, I have got my tickets, passport, bags, clean pants...(boy and lady boxers) hidden the scissors...
the car has got a new exhaust and had a health...
Well 5 weeks into my 12 weeks of cdt chemo and doing okay .No bad side effects bit breathless ,tired ,shake a bit , numb mouth and strange tastes but nothing compared to sunny leith and many, many others . Because the chemo seems to be going well and my bad protein levels have dropped , if continued in this way i will be sent to St Barts after 100 days grace from this chemo. There to have a 6 week stay for stronger chemo and then stem cell treatment . The thing is this may give me another 2 years or...
Now that the consultant & specialist nurse are back from their hols (whereas I had to cancel mine) I rang to speak to the nurse on Monday. Yes, I've been discussed at the MDT last week, but the consultant has to look at the notes (after clinic on Tues) & set priority order for clinic appointments. Can't say which day it will be.
Today (Thurs) still no contact. Rang the clinic - no appointment date set yet. Will be in the next week or three - only one clinic day next week, with the...
Little update, I am having a down day not sure why wasn't when I woke up it seems to of crept up on me over the morning.
Dad had his last of 5 Radiotherapy sessions yesterday and has been doing ok on it but the pan has been getting a bit worse I think and so today he is calling his nurse for advice and also to suss out what happens now as we don't have another appointment booked or anything planned so radiotherapy is now done what next?! We have been told he will have chemo so I guess he...
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