Bewildered

1 minute read time.

Hi

Two weeks ago I was diagnosed with Transitional Cell Carcinoma, and informed I would have my left kidney removed.  I am still in shock and am finding it difficult to find much written about TCC.  At the time of the surgery my consultant said that my paraortic lymph nodes were enlarged and removed, this was all intially equally worrying, but he has since said the cancer did not spread to these.  I have a meeting with an Oncologist on Monday and feel very nervous, this is the beginning of a journey and I am not quite sure what to expect.  I have so many questions such as:  How long does thepain take to subside after a nephrectomony? I am still on tramadol and find pain is unbearable of some days, I have good and bad days/nights. 

I am also wondering if there is such a thing as preventative chemotherapy?  Once diagnosed with Cancer it obviously is with you for life, but how do you stop it defining who you are and try to mainatin some semblance of normal life? what questions should I aks the Oncologist?  What should I expect?

I am getting married in December and feel like planning my wedding is tempting fate!

 

Anonymous
  • FormerMember
    FormerMember

    Hi Sue and welcome to this site.

    I don't know anything about your particular type of cancer I'm afraid, but if you look to the left of the page you will find a list of  cancer types. Hopefully you will find some information there. If not, you can phone the freephone number to the right of the page and speak directly to a Macmillan nurse who should be able to provide you with some infomation.

    You may also find others on here who have knowledge of your particular cancer, either being a patient themself or a carer of someone with this illness.

    I hope you will continue to come on site as we are a very friendly bunch who are more than willing to offer support when needed. You can offload, rant, scream or have a laugh whenever you want.

    Hope to see you around some more.

    Best wishes, Christine xx

  • FormerMember
    FormerMember

    I have everything crossed for you that you meeting goes as well as it can. Julia xx

  • FormerMember
    FormerMember

    Hi Sue,

    Sorry I cant give you any information on your specific Cancer if you follow the directions Christine has given you should get your answers. If you have any more questions

    you would like to ask . Just stay on this site and somebody will have an answer for you. All the best and Good Luck.   Look after yourself .

    Taake care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    Thank you all for your support.  It is a rare one I am told!!!  However I am due to begin chemo in two weeks - fingers crossed.