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I have a relative that has a Glioblastoma Brain Tumour that is very aggressive and need to help and advice. If you could help that would be fantastic:
*I would like to know what to expect
*What should we be asking the doctors to ensure that we do not miss anything vital, sometimes you go blank when you are in the room and I want to ensure that I ask everything that is needed to ensure then get all the treatment that is needed.
*How long does treatment normally take to start, everything seems to...
dont know what has happened today but just want to eat - trouble is none of the stuff i can manage seems very filling - managed to stay awake all day and a longer walk with the dog this afternoon which will help me sleep later. Have asked my Doctor to consider reduction in pain relief through syringe driver just to give me a physical step towards weaning myself off the oxycodene (am currently on 40mg per day and have asked for it to be reduced to 30mg next week) - got to get these tubes out of me...
So, there were no more deep depressions last night. Obviously that bit of self indulgence helped. I took my thyroxin at 8am this morning and went back to sleep until 10am when my alarm went off again to remind me to take my pregabalin.
I have a small and malformed left kidney that gives me problems from time to time. I never even noticed it until a few years after I developed diabetes, and then the two of them got together and I landed in hospital with a temperature so high it almost killed me.
...bit of a bump today as boredom set in after the busy day yesterday. Lack of taste also made a trial of which coffee tasted better fail as all tasted of nothing much, I really hope the taste buds come back some what, I never really appreciated spending money on some tasty stuff. Even a chewy mint had to be aborted mid swallow as too big (even when chewed). Forced myself out to take dog for a walk in the rain but lack of real exercise has hip flexors irritating me now and i am only walking!). Difficult...
would like to hear from someone who has just lost their loved one.
In an attempt to keep my mood high, and as a reward for getting BF's birthday present sorted in plenty of time, I did a little online shopping for myself and (at the risk of advertising) bought this tunic top:
I already own these:
and this (there's a lot of green going on, isn't there?):
The velvet jacket was the big expense and it was a reaction to learning I had cancer. I'd been planning to wear it on Hallowe'en with my 1980s squashy black velvet hat, but I spent that day in hospital...
After being so cheerful when I blogged yesterday, my mood started to dip at about 5.30pm. By the time BF got home - and he was working late because he's on a deadline - I felt as though I was broken, about as bad as I did last May before my GP started me on pregabalin. When he told me that he might have to work over the weekend I felt totally dejected and abandoned. By the time I realised it was probably the Levothyroxin messing with my head, and I should phone the Macmillan nurses, it was 7.59pm...
well one might say it has been a successful day for me today. Have arranged a couple of socials and visits, had a visitor, had a phone call from a good friend (very difficult to express feelings this way - blog much easier), made headway on additional food via mouth (including a stab at some tuna and mash), appetite is voracious just wish i could smash a burger king, purchased a top of the range soup maker, assisted with my sons coursework submission, ordered next round of medication, walked the...
Next to my GP Surgery - I think Spring has arrived.
I was exhausted and grumpy last night so I wasn't very cuddly even though we were allowed. Poor BF.
I'm in a much better mood after a really good night's sleep and lie-in. Now I'm thinking about the last few days properly and how things are now. I felt a little bit sick first thing but then I felt a bit sick soon starting Liothyronine as well.
It's nice to be be taking the tablets only once a day instead of three times. I had alarms...
