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Ok so I'm now 7 months into treatment for a wild type metastatic GIST and it has been a long 7 months.
How it started: In July 2016 I had a MRI scan on my bowels and a colonoscopy because I had been having stomach cramps for around 3 years. Shortly after I went to see the gastro doctor who told me all was fine. Few! That's a relief! Or so I thought! Happy days of discovering there were no nasties in my bowels were short lived wehn he proceeded to tell me that the MRI had caught a small section...
Saw this in the garden this morning. It was there last night too but with its wings spread. It was totally still and we'd thought it was dead. Obviously not as today it's in a differentposition. A beautiful creature. Good luck to anyone with treatment or results today.
After the tribulations - a calm last week ahead of 4th rchop next Tuesday
Good health - even managed a gentle circuit at circuit training last night
Bowels behaving - and not so tired
So gird up my loins for next chemo with fingers crossed
I believe I am due a reassessment after 4th chemo session - bated breath
Well I've stopped worrying about the appointment on Monday. I keep forgetting Southmead Hospital is brand spanking new and built to deal with future capacity. This is why I'm lucky enough to get my treatment quickly. I don't know what my results will be but I'm determined not to worry unless there is something to worry about. I'm expecting my turbt scab to start shedding any day now. Is it noticeable when it starts? Or is it small bits? I find myself peering down the loo looking for things. ...
Cycle #3 has not been so bad physically as the previous 2 cycles. I stopped taking the drugs after 3 days and didn't feel nauseous after that.
However the ill period lasted longer - about 10 days. Just yucky. As the week went on I became depressed and very low emotionally. I really thought I was going to die. I kept telling myself life wasn't really that bad, it was just the effect of the drugs and yes, lo and behold, I've snapped out of it as the physical effects have finally gone and I feel...
I've had 2 rounds of chemo and daily radiotherapy for 6 weeks. Finished last week - yay!!
My once very thick hair has (as warned) thinned an awful lot. I don't have bald patches but you can see my scalp. Texture is now fine and weak and all colour stripped. I feel like my hair has been stripped of strength, lustre and protein.
I'm currently using baby shampoo and simple conditioner. I've been advised I can now use regular shampoo.
My question is what products do you guys...
I'm finding all this a bit surreal. When I was told I had cancer just over a month ago I cried for a week. Then it settled into occasional bursts, then it stopped. I expected pain and got only mild discomfort. Everything has changed and yet nothing has changed. Now the tumour is out, the catheter is out and I'm waiting to heal and waiting to get my results. I have to make myself rest, stop myself from doing anything strenuous, all the while feeling somewhat of a cheat. My partner has just taken my...
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