Hi Peops
How I got here….
I had been suffering for many years with IBS, or at least that was what the diagnoses was then.
More recently I was suffering from a lot of pain in my upper abdomen, just under my ribs.
In 2014 after feeling even worse than usual, I went to my GP, tests done & I was diagnosed with a vitamin B12 deficiency, which I was told would be for life. So, wanting to understand why I had this, I asked my GP for a defined reason (should be an underlying reason)
She then sent me for an ultrasound scan on my upper abdomen, they found a ‘cyst’ the size of a Grapefruit. Then I was sent for an MRI, which confirmed the lump. I was referred to a surgeon, had a couple more tests & was then told by him, that I needed to have a ‘Whipples’ operation to remove this lump. At that point I was advised that he thought it was benign, but could become Cancerous,
So, I should have it removed to prevent that happening.
Post Op (Feb 2015) my surgeon confirmed that it was a Neuroendocrine Cancer of the Pancreas
(PNET). This did not come as a surprise, I am realistic. He then sent me for a scan PET/MR to check for any spread. Unfortunately, there was
A single Lymph node which was showing as being cancerous. The surgeon had already taken numerous lymph nodes from the surrounding area, but this one ‘rougue’ node was deeper / further in.
I then had Chemo – Afinator (Everolimus) for three months, followed by further surgery (Oct 2015).
So, that was then. I am now Diabetic. I also take Creon for digestion (along with other Meds)
I am now fully recovered, lead a normal life, work full time. I am trying to keep my weight down.
Pretty much pain free most of the time, suffering occasional stomach cramping, which is not nice.
BUT…… I feel very lucky to be here, & am generally happy, positive & try not to allow any negative thoughts to creep into my soul.
My Hubbi is my rock. I am Mummi to three (grown up) children, Nanni to two wonderful Grandkids.
& our Dog gets us out walking every day for long woods walks.
Love holidaying, have been skiing twice since this happened, (having never done that before) & have
Many things I planning to do.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007