I found a large lump on the back of my arm last week. Since then I have seen the GP, had an ultrasound confirming it wasn’t lipoma but in my tricep, 7.5cm and vascular. MRI has suggested it appears to be sarcoma. Seen specialist today who has told me...
Hi, I have recently been diagnosed with LMS of the abdomen and am being treated by the Royal Marsden. They have decided not to operate but have put me on letrozole as the soft tissue masses seem to love the oestrogen that is being produced. I am 72 so...
I had had the arm tumour removed, very quickly within a few days thanks to the Macmillan nurse insisting I could not wait 5 or so weeks for radiotherapy on nhs and my company health insurance luckily covering it. Apparently tumour had grown so much in...
Hi there im Kim 35, with rare sarcoma tumour. Would love to chat to people who can give me some advice and tips? I’ve had my hysterectomy (as it was attached to my cervix) very rare! im starting preventative treatment of chemotherapy & radiotherapy...
I am newly diagnosed with an aggressive liposarcoma in my arm. I can literally see it growing. Tests on whether it has spread are inconclusive. Each time I feel I could cope with it all I seem to get another bit of bad news. No treatment dates yet due...
Hello, I am in a lot of pain to put it mildly. I cannot get comfortable. The pain shoots up and down my leg when I stand up. I have been given paracetamol and 30 mg codeine. I am told that I cannot have a treatment plan until the biopsy results are back...
Hello, I have just joined this group today, my husband was told only a week ago that he has leiomyosarcoma and it has spread to his lungs and liver, he also has a blood clot in his IVC which is causing his legs to swell very bad, this is the only reason...
Hello, Does anyone know of any ongoing support groups? Thanks
Was just diagnosed with abdominal sarcoma last Monday have referral to sarcoma team and have mri on Thursday. They have said sarcoma will be removed and that plastic surgeons will probably be involved in surgery. Emotions all over the place feel as tho...
Hi just joined this group, my son has been for MRI for suspected sarcoma in calf, we have been waiting 12 days for results. Friends keep saying we would have heard by now if it was cancer but I am driving myself insane with worrying. My son is autistic...
