Hello All, I had recent surgery for stomach GIST which seems to have gone well. Partial gastrectomy 4 weeks ago now. I felt fine until I had an upper GI bleed went to my local A&E and it was quickly recognised after endoscopy. from there it was robotic...
Hello In Jan 2023, with no prior symptoms , I was rushed to hospital with a perforated tumor in my small intestine. During life saving surgery, another tumor was found on my liver. After 6 weeks of waiting for the outcome , I was diagnosed with high...
Anyone else been diagnosed with a GIST Tumour? I have been diagnosed with a 12cm stomach GIST and am being treated with imatinnib to shrink the tumour to a size that can be removed by keyhole surgery. I have no symptoms and feel fine but would be interested...
hi I have had a myxofibrosarcoma removed from my foot. A below knee amputation has been offered/suggested, for quality of life, as radiotherapy apparently may leave me with a painful useless stiff foot. There are no local patients that have been through...
I am 59 years old, post menopausal, living in Devon and was diagnosed with probable embryonal Rhabdomyosarcoma following a full hysterectomy in January 2025 to remove a Teratoma which unfortunately ruptured during surgery. following 9 rounds of IVA...
Hi all. Newbie here. Got to be honest, not a place I ever wanted to come but I guess that is the same for all of us. I was diagnosed with a form of sarcoma in September with a lump on my chest wall/ ribs. I had two ribs removed in October, which...
Hi, new member, 11 months in to RMS cancer journey with my 17 yr old son. He had 6 months of chemo on FAR-RMS trial( tolerated really well, made great progress) plus 5 weeks of radiotherapy. Treatement ended beg Sept abd started maintenance oral therapy...
Hi Im a 57 year old fairly fit and healthy lady just diagnosed with a 71mm uterine LMS mass. Its a big shock and I have read up a bit on this type of cancer and it was not great reading tbh. Some reassurance from others would be good.
Hi. New here but not to the sarcoma world! First diagnosed in Dec 2020 wondering why I was getting bigger and bigger (knew I wasn’t pregnant!) Turned out the be an 18kg Retroperitoneal sarcoma. Operated in March at QEH. Biopsies discovered I also had...
Hello everyone, Three years ago, my wonderful Mam was diagnosed with uterine leiomyosarcoma. We devoted ourselves completely to loving and caring for her, but sadly, she passed away eight weeks ago. I’m now hoping to honour her memory by supporting...
