Hello, I am dawn I was diagnosed at 39 after a hysterectomy for a fibroid after an MRI rules out cancer… leiomyosarcoma is the diagnosis stage 1b in may 24 in June, the CT was no evidence of disease by sept it had spread to my lungs after 20 watch and...
Hi I’m new to this forum and have been directed to this group from one of the Community Champions . I’ve had endometrial cancer 13 years ago and breast cancer in 2023 . Both were early stage and I’ve felt lucky . I had surgery and Radiotherapy which...
Hi all I have spindle cell sarcoma grade 2. Waiting to start radiotherapy. Can anyone tell me how you feel after radiotherapy ? . How will it impact my life, down for 6 weeks of treatment after operation to remove lump on shoulder.
Hi everyone I am new to the forum.I was diagnosed with a GIST 20mm on Monday in my outer wall of my duodenum.Total shock. MacMillan advise should be referred to a specialist GIST hospital nearest being Christie’s Manchester as a very rare form of cancer...
Hi im really concerned ive been diagnosed with a small GIST in my stomach 1.5cms. I havent had a proper consultation with a gist professional they just keep sending me for more scans etc. I dont understand why they dont just remove it while its small...
I have been seen by a sarcoma service for a biopsy on a lesion in my thigh, they’ve said benign however I worry this has not hit the potential malignant area and my diagnosis is wrong. Has anyone any experience of a false negative core needle biopsy or...
I have had an MRI scan and a biopsy. The sarcoma is in my right leg. It is getting bigger and more painful by the day. As my appointment is getting closer my anxiety levels are rising. I long for the appointment, I dread the appointment. My dread is that...
Hello all, I am new hear and feeling incredibly lost! Does anyone know if it would make a difference if the tumor was removed by the urology team rather than the sarcoma team? We are worried as everything we are reading says it must b removed...
Hello all, I am new hear and feeling incredibly lost! Five months ago my husband began feeling very unwell with back pain and kidney pain, blood in urine, they suspected Kidney stones and sent him off for a CT.. the Kidneys were clear for stones...
Hi there! I’ve recently been diagnosed with leiomyosarcoma. I was initially admitted to hospital with suspected appendicitis but they quickly found a large mass in my abdomen that we named “Dave” (who knows why). They weren’t sure if Dave was a fibroid...
