Was just diagnosed with abdominal sarcoma last Monday have referral to sarcoma team and have mri on Thursday. They have said sarcoma will be removed and that plastic surgeons will probably be involved in surgery. Emotions all over the place feel as tho it can't be real and they have made a mistake and then filled with panic and total dread. The waiting is awful. Trying to keep busy but can't get outside of my head.
Hi Suzy0
Welcome to our community, I hope you find it both supportive and informative.
I am Steve one of the community champions here. My experience with cancer is through my wife who has Leiomyosarcoma. Her path to diagnosis was rather long and so perhaps in her case it was almost something of a relief to finally be given a name to what she had.
We have quite a lot of information about tests - and waiting - here, pretty much everyone struggles with this.
Do post on here whenever, one thing I found really useful was to discover others with sarcoma as it is fairly rare it can be hard to find people who understand.
<<hugs>>
Steve
