Hello, I am in a lot of pain to put it mildly. I cannot get comfortable. The pain shoots up and down my leg when I stand up. I have been given paracetamol and 30 mg codeine. I am told that I cannot have a treatment plan until the biopsy results are back, which can take a few more weeks. It was taken on 19 December. Can anyone give me advice on how to get comfortable in a chair. Also, am I on the right tablets? I only speak to a nurse or doctor (GP) over the telephone - face to face contact doesn't seem to happen anymore. The lump in my leg is bigger than a grapefruit and the lower limb is numb. I am thinking that if it is several weeks before I am offered an operation this cancer will have grown and spread and the pain becomes more severe.
Hi Medie
A warm welcome to our community I hope you find it both welcoming and supportive.
Until we suffer chronic pain it can be very easy to underestimate how impactful it can be, my personal bugbear is ankylosing spondylitis a form of rheumatism in my spine.
Cannot say as I have any great suggestions for you, my wife's sarcoma is different in it was of gynacological origin but for her with some chemotherapy the doctors managed to render it stable. Her route to diagnosis was long and complex though.
The time befween diagnosis and treatment many feel it about the hardest part of the entire journey. The message we hear most often being the sooner treatment starts the better the outcome but it is perhaps worth reflecting that is more to get patients to their GP in the first place. It is generally worth making sure we get the best treatment and that is what the doctors are likely doing now.
I know is is just another phone call but have you considered speaking to one of the staff on the helpline here, they may have some tips that might help and it is a free phone call too.
<<hugs>>
Steve
