Hi Im a 57 year old fairly fit and healthy lady just diagnosed with a 71mm uterine LMS mass. Its a big shock and I have read up a bit on this type of cancer and it was not great reading tbh. Some reassurance from others would be good.
Hi Gert3f7768
Welcome to our community, I hope you find it both informative and supportive.
I am Steve, one of our community champions and my experience of cancer is via my wife who has LMS, in her case beleived to have started with a fibroid in her womb though she also developed pyometra that led to an emergency hysterectomy.
Her sarcoma was only diagnosed after a number of biopsies and she has secondaries scattered through both lungs.
Her first round treatment was with doxyrubicin and while that was fairly effective it caused a lung to collapse - this was fixable though but it took some time before they finally managed to make her stable enough to try something else. The second chemo was Gemcatabine and this seems to have shrunk the tumours a little bit but rather more significantly they appeared to stop growing. She has now had stable disease for over 10 years and now she only needs to see the oncologist once a year. She says the cancer does not bother her and she is not botering it.
As you no doubt have found sarcoma's are rare - most doctors will never have met one in their entire career. There are a few centres that specialise in the treatment, we are lucky to live quite close to Oxford. Sarcoma UK have a list of the centres here.
<<hugs>>
Steve
