Hi folks, I'm a 40 year-old lady living in London. I've recently been diagnosed with a very rare cancer, low grade endometrial stromal sarcoma, stage 4b with several metastases. Last September I had total hysterectomy so on top of incurable cancer I...
Hi, my 15 yr old son was diagnosed with Rhabdomyosarcoma in December 2025. It originated in his testicle, which was removed but it had metastasised to his lung. Chemotherapy started on the day of diagnosis. He was due to have 9 cycles of chemotherapy...
Hi folks, Not sure how many people with the same diagnosis I might connect with here - apparently we're quite rare - but I thought I'd say hi anyway. A year after first seeing my GP about a growing lump in my back, I'm a now couple of months after...
Hi, my husband has just been diagnosed with a non aggressive sarcoma in the muscle in the top of his leg surgery booked for 19 Nov to remove sarcoma and muscle with radiotherapy to follow, can anyone give me some idea of what to expect as unfortunately...
Just got the results of right thigh muscle biopsy which confirms myxoid liposarcoma due to start 5 weeks of radiotherapy to shrink the tumour before surgery, would welcome any advice about side effects and post operative recovery as normally very active...
Hi. I just need to try & make sense of what my lovely daughter is going through. She has had 4 rounds of chemo & has returned to the hospital each time with awful side effects. Is anyone on here going through this illness?.
Hi everyone, I am 35 (F), diagnosed with advanced leiomyosarcoma a couple of months ago (with lung mets). I'm about to go in for my second round of doxorubicin and ifosfamide inpatient, nice to meet you all
Hi All, Hello everyone! My husband aged 67 was diagnosed with Angio Sarcoma on his scalp 30/12/2025. We had never heard of it but the first online search made us both terrified of what we were facing. It had taken nearly 4 months from the first GP contact...
Hi everyone! I haven't posted since 2024 after initial diagnosis, so feel a bit like a 'newby' again. I feel luckier than some of you, my experience was good, in that, following some blood tests because I felt a bit out of sorts, an ANP at my surgery...
I have been diagnosed with this type of soft tissue sarcoma, has anyone else had this? Looking briefly at the forum can't see anyone mention this. Would welcome any information on treatment and possible recurrence.
