Hi, new member, 11 months in to RMS cancer journey with my 17 yr old son. He had 6 months of chemo on FAR-RMS trial( tolerated really well, made great progress) plus 5 weeks of radiotherapy. Treatement ended beg Sept abd started maintenance oral therapy 2.5 weeks later. Mid Oct he had repeat scans. CT and MRI are clear. PET has shown 2 small areas in pelvis ( that had been there previously) showing - oncologists words- 'slightly lighter' than last scan in June. Her view, we monitor it, with repeat scan in 5-6 weeks. Anyone had this and found it to be something not to worry about? I am,once again, going out of my mind with worry, falling into all kinds of horrid rabbit holes. Thanks for reading.
