Hey there! I'm just starting this as I'm 19 years old and have already had an ultrasound (they said it was a fatty lump) then got sent to a MRI who also suggested it was a fatty lump but quickly moved me to the Suggested sarcoma diagnosis. I have a...
Has anyone had their tumour tested for presence of B7-H3 please and if so where did they send it to get it tested? My 13 year old daughter has a rare round cell sarcoma and we are looking at potential trials for CAR T. One of them is in the US and needs...
Hi On my fb page I am being as open as possible and I want people to talk about how my diagnosis has made them feel and I want the Cancer word spoken. Because I don't want anyone to feel like they need to hide, from me, or the cancer. Does anyone...
Hi. Has anyone experience of obtaining treatment outside of the uk please preferably the EU. Oncolytic virus therapy, RIGVAR, DCT etc - thank you
My husband has a de differentiated liposarcoma in his stomach. Only way forward is palliative chemotherapy which will be a 3 weekly injection of trabectedin and 3 weekly doxorubicin has anyone else had this treatment. Did you have to stay in hospital...
Hi I am currently awaiting further tests to confirm whether I have a liposarcoma. It's all been a massive shock because the issue I'd gone to hospital was a possible lung clot. I've been referred to The Royal Marsden, so know I'm going to be in good...
Hi all, I am new to this site and very thankful to have found it. I would like to extend my best wishes and support to all on here affected by cancer. I'm seeking a bit of advice but I'm not sure if I'm even asking the right questions, to be honest...
Hi there, just checking in to see if there's anyone out there diagnosed with Well differentiated retroperitoneal liposarcoma. It seems to be an uncommon discussion here at the mo probably because it's slow growing and not aggressive unlike many other...
Hi all, I had a primary sarcoma tumour removed from my right lung last November. A CT scan done in January came back clear and a PET scan done last week showed 3 new tumours, still in the right lung. It also showed a few cancerous cells on my kidney...
Hi there, I'm 55 and was diagnosed with Kaposi Sarcoma on the 26th February, but they do not know which of the 4 I have. I am due my CT scan tomorrow and follow up with my consultant on the 18th. I have purposely tried not to google this cancer until...
