Hi is there a UK list of GIST specialists and GIST surgeons? Anyone recommend anywhere? thanks in advance
Well after weeks of tests and 2 biopsies as 1st came back inconclusive we finally have a diagnosis for my husband's stomach cancer he has a differential liposarcoma. As this has spread to his omentum only way forward is palliative chemo. Told it will...
I have had two ultrasounds, an MRI and a CT scan which have confirmed a 5.5cm lump near my bowel/potential connect to or in the bowel. They are going straight to surgery instead of a biopsy. Why would they do this? What kind of surgery can I expect? They...
I have metastasis sarcoma in both my lungs I have an opportunity to have chemotherapy but my oncologist doesn’t know how effective it will be as it is very rare Does anyone know of anyone who has had chemotherapy with this condition please
Hi, I’m new here and have recently been diagnosed with Adenosarcoma in my womb! Just wondering if anyone else has had this or has it now??
Hi Everyone, I posted on here at the beginning of 2023. I'd had lumpectomy left breat August 2010 followed by 8 chemo and 15 radium. 2020 lumpectomy on right breast, no chemo but 15 radium. On 16th December 2022 I noticed the underside of my left...
Hello has anybody else been in this situation? Amputation is very daunting but probably has my best outcome. The lump is right next to my vein etc. The surgery to remove it would have no guarantee on a functional leg. I'm 63 and was relatively fit...
Hi all, I am still waiting for my final dx for soft tissue sarcoma and cannot work out or even find out what is taking so long? I just wondered if anyone else had waited as long as me from first biopsy? Or actually if this is normal and to just dig deep...
Hi my daughter was diagnosed with Ewings sarcoma soft tissue at the age of 33 in March. After being told she had gallstones at the end of January, being hospitalised and deteriorating she was transferred to Oxford. She began emergency chemo whilst in...
I had surgery 8 weeks ago to remove a large lump from my scalp. It has been completely removed with an identified 6.8 mm margin, with a skin graft replacing the area removed. It has been identified as a soft tissue sarcoma. I am being referred to a specialist...
