Hi everyone, this is just a general personal opinion & advice I am looking for. I had a hysterectomy to remove my cancer & it was successful, but due to it being sore rare they can’t say for sure there is no cells under my vessels that can’t be seen...
Hi all, am new to the group. My husband has just been diagnosed with Rhabdomyosarcoma in his hand, he was injured in Afghanistan 12 year ago and the metal plates are a huge concern. After a year of being fobbed off its a cyst they have identified the...
Good morning everyone! I have just found your forum and am desperate to share what's been going on for me, so I hope you'll forgive me if I splurge! But first, I'll share a bit about myself. I'm 73 and have a long and loving marriage (54 years!). I...
Hi I have been told got soft tissue sarcoma in my thigh. I go in on Monday for my first op to have removed and gotta have a +/- vac bandage just wondering if anyone has a similar bandage.
To quickly recap: Following a trip out of my front door in early June, several things were identified on the CT scan of my torso at A&E. One of those turns out to be a potential GIST located in my duodenum. I have been put on the '28 day pathway' and...
hi all, my primary care doctor is referring me to a surgeon to remove my abdominal tumor and send it to pathology. she said that she was “extremely concerned” about my tumor due to all the symptoms i’m having, she thinks the tumor is causing them, and...
Has anyone used booking health for sarcoma treatment in Germany please ?
Hello In May 2024 I was diagnosed with low grade myxofibrosarcoma in my right arm after more than three years of baffled doctors looking at my slowly-swelling right forearm with visible bruising. Despite numerous blood tests and consultations, two ultrasounds...
Hi everyone. I am post sarcoma surgery and 3 years into my 10 year monitoring. I’ve not been officially diagnosed as in remission as it’s still monitored. We are finally buying a house and now I need some insurance. This is now proving to be difficult...
During pregnancy my left leg became bigger than my right. After being checked for DVT twice, I was told I had a cyst and that this was an issue of swelling. I kept going back to the GP and was told various things mainly related to being post-partum, having...
