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Hi, last Friday I was diagnosed with Neuroendocrine cancer. My primary tumour (well differentiated)is 60mm in my small bowel and I have four deposits on my liver. I was told at my appointment they would not do surgery to remove my primary and that they...
Hello. My dad was diagnosed with a NEC tumour in his colon and surrounding lymph nodes in March of this year. The plan was for six rounds of chemo, but he had a terrible time with sepsis and a blockage, so he only managed a few rounds before emergency...
Hi, I'm new here I'm 43 years old and have recently been diagnosed with stage 4 gallbladder nec, they said its aggressive and have given me a prognosis of 12 to 18 months to live. I am being treated, I am about to start my 2nd cycle of carboplatin, epotoside...
Hi new to the community and just looking to connect and share, just in the middle of my 3rd chemo round so what better time for a chat?
Hi there, I was diagnosed with NET tumours in various places in my body (liver, breast, eye, pancreas, brain & bones) liver being the worst. I recently have been made aware that I now have a stage 1 renel cell tumour 2.5cm x 3.5cm. I wasnt give 2 options...
Hi I’m new here I was diagnosed with net cancer in October last year after having a prevention ovaries removed due to a previous breast cancer in 2023 found secondary net from the biopsy physically I’m getting a lot of tiredness but now I’m experiencing...
Hi I had net tumours in the small intestines. I had a right hemi colonectomy (sorry about the spelling) to remove them. It feels like it’s taken forever to recover from the surgery and get my energy back. Since Christmas I seem to be struggling with a...
I was only diagnosed in November. They found the liver tumours first and following Pet scan the primary was found hiding in the small bowel. I honestly haven’t been honest with myself and use my humour to distract. My work know and immediate family but...
Hello, newly diagnosed with MEN1 and pancreatic neuroendocrine cancer. I’m hoping to connect and talk with people with similar experiences.
Hello I was diagnosed last December with Neuroendocrine cancer. The main tumour is in my small bowel, Stage 2, with secondary tumours in the liver. I also have carcinoid syndrome as a side effect. I have a lanreotide injection every 28 days and have...
