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Awake and feeling sorry for myself. I feel so much has changed in the last couple of months and I’m struggling to get my head around it all. I’ve updated my profile to explain my situation so far. My worry at the moment is carcinoid syndrome. I’ve read...
Hi, I’m new here, I have just been for a biopsy on Friday on my right lung, which I’m waiting on the results. I have another carcinoid on my left lung, which has started growing since my last pet scan. The surgeon did mention that he would take away half...
Hi everyone, I’m caring for my husband, he’s 76, very fit. Until recently! After about a year of vague but gradually worsening gastric reflux he was diagnosed with an oesophageal tumour which after a PET scan and much more pathology was re diagnosed with...
Hello everyone. Just joined this group. I was diagnosed with stage 4 neuroendocrine cancer, carcinoid syndrome 6 years ago. I'm doing pretty well. But I hate the flushing. I'm currently getting monthly Sandostatin injections. My question is are there...
Hi all I have lung cancer I'm 52 I had kidney cancer 3 years ago. I had 3 nodules but they had grown and acting suspiciously so had biopsy on one then failed attempt on another so they opted to remove with lobe of lung so 1 top left is carcinoid ...
Hi, I'm 35 and I got told about 3 months ago I have cancer. I had been going to the doctors for around a year and a half and got told all sorts before one doctor sent me for an ultrasound. This was just over 5 months ago now. I originally got told...
As it’s a rare cancer it’s very hard to find support. they say it’s incurable but treatable, I’m feeling very lost and low, iM only 52 strong and fairly fit. I had been back and forth to the Dr 5 months and no referral I clearly had signs of bowel cancer...
Hi , i was diagnosed with this in March 2025 originally i went to the Dr’s for being out of breath, flushing was so bad my nose & skin was a deep purple colour very embarrassing. Was tired all the time no energy really bad pains in stomach & back no appetite...
Hi everyone, I’ve recently been diagnosed with stage 4, grade 1 Neuroendocrine cancer with 60mm primary sitting where my small bowel meets the large with multiple liver mets. No op for now and started treatment with my first Lanreotide injection yesterday...
I have incurable Neuroendocrine Cancer which has progressed a lot in recent years. My first major surgery was when I was 13 in 1981 so I've never known any life without treatment, scans, hospitals or worry and depression. I have lived far longer than...
