Hello
I was diagnosed last December with Neuroendocrine cancer. The main tumour is in my small bowel, Stage 2, with secondary tumours in the liver. I also have carcinoid syndrome as a side effect. I have a lanreotide injection every 28 days and have been told this has slowed the growth of the main tumour and it is now under control - the tumours in my liver are responding very slowly to the injections.
My main problem now is diarrhoea - sudden, extreme and very frequent. I am on a high protein high calorie diet and finding it difficult to gain weight (a great concern) and lead any kind of normal life. Also I have protein drinks twice a day and several Creon tablets with food throughout the day, with other medication. My medication has been reviewed and changed many times in an attempt to solve my diarrhoea problem.
Has anyone experienced this problem? I would appreciate hearing from you and anyone with a similar cancer diagnosis.
Thank You
