MEN1 NETS found

Hi newtothisnetstuff welcome to the forum..Sorry that you have not had a response as yet but by my replying this will put it into the thread and will be on the top for others to see and respond to you. Best wishes for now Gail

Thank you

Hi i have the same and would love to talk to someone 

hello, I’m available to talk anytime

I'd love to talk .as I've never spoke to anyone since diagnosis in April 24

Me too. If you don’t mind me asking... what were you diagnosed with?

Pancreatic cancer .net 

Sorry to hear that. I went to a NET specialist today and they said I don’t qualify for surgery so it’s just management with treatments from now on. Do you have MEN1?

I can't have surgery either .I get a injection every 28 days .I don't know what men 1 is 

Multiple endocrine neoplasia type 1 is a genetic mutation where a tumor suppressing gene is missing. I have 5 pancreatic NETs and they never mentioned looking for more. How are you doing on the injections?