Newbie - neuroendocrine in prostate

Hi Robin4fronts and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Will do and thanks for your help

Hi Robin, I suggest checking out Neuroendocrine Cancer UK, a registered UK charity who run various support groups and have lots of really useful information for those newly diagnosed with NET. I was diagnosed with a NET in my ileum ( the bit between small and large bowel , in May this year and had surgery to remove tumour in August this year. Now in recovery and seeing the consultant tomorrow to discuss the full histology results and what it means for future treatment. 

Thanks so much, that’s really helpful, will do. I wish you all the best with your results