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Hello folks, having been diagnosed with a Neuroendocrine tumour, I am seeking a fellow sufferer who has endured the Whipple procedure. I am advised this is what I have to look forward to so would be pleased to hear from anyone who has had this operat...
Hi everyone, I’ve been holding this in for a while but I feel like I’m at breaking point. I’m 45, recently diagnosed with stage 4 rectal cancer, and although I’m in active treatment (currently round 2 of chemo), I feel like I’ve been completely written...
Hi, I have been diagnosed with Poorly differentiated neuroendocrine cancer of the cervix, Grade 3 aggressive. I have had a radical hysterectomy and am now recovering. I have been having all scans to check my full body to see if there are any tumors...
Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years has NEC of terminal ileum, mesenteric lymph nodes, and liver mets. She had surgery December 17 to remove part of the affected GI...
Hi, my sister is 35. Was told she had a shadow on her liver which we know now to be a NET. After more tests, scans & a biopsy on her liver, it appears the primary NET is in the small intestine (duodenum). We have an appointment next week for a full...
Hi, first time posting. I was diagnosed with a well differentiated NET in my ascending colon 23/4/25 after a colonoscopy and CT scan. Had 2 MRI scans with contrast as liver and pelvis areas of concern. Been told today there are tumours in my liver....
I have small bowel with many small liver tumours. I’m on sandostatin injections every 4 weeks.
Hello not sure if I am in the right forum.im under investigation for adrenal cortisol carcinoma having found a 5cm tumor on my adrenal gland,just got an appointment to see the surgeon next week haven't been told I have cancer yet but they have rushed...
Does anyone else suffer with extereme tiredness
Hi my fellow NETs patients, I’m hoping someone can help. I was diagnosed with small bowel NETs 15 ( 2010)years ago had small bowel resection was discharged after 5 years (2015) . 5 (2020) years later I didn’t feel well and after numerous tests diagnosed...
