Hi, last Friday I was diagnosed with Neuroendocrine cancer. My primary tumour (well differentiated)is 60mm in my small bowel and I have four deposits on my liver. I was told at my appointment they would not do surgery to remove my primary and that they would most likely treat my liver mets with chemotherapy first. I’m assuming as they told me this my case must have been reviewed at the MDT. When leaving the appointment I was told I would be contacted by the oncology team most definitely this week to meet and discuss next steps. I didn’t ask many questions on the day and after reading about this condition I have lots. My main worry which is causing me a lot of anxiety is the large primary tumour. If it’s so large isn’t there a chance of it perforating? No one has been in touch and it’s now a week tomorrow since I had the news. I’m terrified and need my mind put at rest so I can sleep. Has anyone had a similar diagnosis and what is the average time for me to receive my next appointment. I live in Scotland and attend Ninewells hospital in Dundee. Any advice would be very much appreciated.
