Hi I had net tumours in the small intestines 9 months ago.

Hello Wilde 

I am Brian one of the Community Champions here at Macmillan. I have just noticed your post has gone unanswered. I can't answer it myself as I have a different cancer, however by me replying your post will be "bumped up" to the top of the page and I hope seen and replied to by other members of the Neuroendocrine group.

Anxiety is common amongst people with a cancer diagnosis - I hope you don't mind bur here's a few ideas:

* Do you have a "Maggie's" near you . This is a cancer support charity where you can just drop in and have a brew and chat - link here - Maggie's.

* There's Anxiety UK - They have a support line on 0344 477 5774 and www.anxiety.org.uk.

* There's our Support Line on 0808 808 00 00 (8am to 8pm 7 days) where you can get some great help and support for anxiety.

I do hope the above help and you start to feel better .

Best wishes - Brian.

Hello I had an operation in December to remove 4 nets in small bowel my pet scan had only shown one also some lymph nodes removed as it had spread to them I had a second bowel resection also it was open surgery this time and to say it's really taken it out of me is an understatement I'm finding recovery is slow going also anxious about the scan I will be having in May so yes other people do go through the same hopefully it will ease off for you soon I think I will be feeling a bit better once my scan is done and they find nothing else I hope you make a full recovery and soon start to pick up

Charlotte 

Had 2 tumours removed from small bowel (only one showed on scan). Had a follow up scan 6 months later (all ok) now have had another scan a year later and speak to consultant this coming Friday. Worrying, but hopefully will get all clear again.

Thanks for your reply.  It's very difficult to know what is normal under the circumstances.  

Not sure which is worse waiting for scan or the results.  fingers crossed you get the news you want.

Thanks for the reply