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Hi everyone. I am currently awaiting the results of an octreotide scan. I was diagosed two weeks ago. I don't have any feelings at the moment. I am not in denial or feel numb. Is this normal? Other people have cried when they heard the news and I comforted...
Hello
Hi, my son who is 25 has been diagnosed with this, I'm looking for any support or people to talk to with similar. Don't really know where to start or what to say any help greatfully received
Hello everyone. My head is in a spin. I found out yesterday that I have neuroendocrine colorectal cancer. An op is going to be on the cards in about 4 weeks.
Hi Everyone. I'm new to the group. I've just been told by my IBD nurse today that I'm being referred to the colorecretal nurses. My latest MRI has shown something other than my Crohns stricture and they think it is cancer so I'm have an octreotide scan...
I was diagnosed stage 4 bowel cancer in March and recently had surgery to remove secondaries in my liver. However these have turned out to be NET secondaries! It is well differentiated Grade 1. But they don’t know where the primary is. I have been told...
I had liver resection surgery in October to remove what were thought to be bowel cancer metastases. But it turns out they were neuroendocrine metastases! The primary tumour has been identified in my Small bowel. It is well defined and slow growing G1...
Hello, Yesterday I had PET scan and awaiting appointment for biochemical testing to measure hormone levels. This is after a mass on my adrenal gland was detected following an unrelated ultrasound. More info on my profile. Such an uncertain time waiting...
Hi, happy to share any info if it helps! I was diagnosed after 20 years of pain in 2018 with a primary pancreatic NET which had spread to lymph nodes and liver. Had two major surgeries, chemo, and more recently radiation therapy (PRRT) and been on Lanreotide...
I have been waiting for an appointment I have to travel to Warwick from south yorkshire for a specialist scan apparently it's the only hospital which does the scan has anyone had one
