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Hi I'm 55 fit and well with lovely career and active family life upto Dec, got a.pain in side, colon cancer 2 cm showed on colonoscopy. I felt relatively calm and OK until mri scan showed liver shadows. Confirmed in Jan NET, 10 lesions on my liver. Totally...
Hi everyone, Had scan 3 years ago pre heart operation that revealed unspecified ‘liver lesion’. Lesion has recently been identified as probable NET Various consultations and scans later my regional MDT has recommended ablation procedure Im waiting...
Was diagnosed just over 3 weeks ago. As yet have heard nothing about treatment as the specialist multi discipline team only meet every 4 weeks. Finding the whole situation very frightening .
I've recently been diagnosed with a Grade 1 slow growing NET on my pancreas which is about 6cm. Following discussion with medical consultant it's been suggested that I have a Whipples procedure which means removal of most of my pancreas, gall bladder...
Hi everyone, I'm new here and this is my first post. My wife was recently diagnosed with extrapulmonary neuroendocrine small cell carcinoma, which presented in the breast, including one lymph node. It was described by her oncologist as localised, as...
Hi I’ve just had initial tests for carcinoid syndrome. Lots of symptoms & I have had them for a while but not connected them. I have flushes & high blood pressure & already seem to be controlling it a little with diet. But waiting for results is so scary...
Hi, I'm new to the forum and this is my first post. I was diagnosed last April with neuroendocrine cancer of the colon which had metastasised to other abdominal organs and peritoneum. However, I've had 12 cycles of Folfox (finished December '21) and the...
My mum is 67 years old and already been through so much- now this …… she is still in shock and very angry about what is happening which is understandable. Me on the other hand I can’t stop crying - it’s only ever been me and my mum and she’s my everything...
Hi its gillyfrog. I have the same as you mine started in small bowl as it was so long before my gp took action sooner its traveled to liver wall gut and Heart. I have had treatment at guys after a short spell on laritide injections. Which i still have...
Hi, New here. I was diagnosed in December 2021. Net in my stomach. It was found by accident. Since then I have had a polypectomy to try and remove it. This was unsuccessful. I now await another procedure. An EMR? Apparently this will be around march/April...
