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Hi my dad was diagnosed last week with metastatic neuroendocrine tumors and with an unknown primary. It took 3 months of tests at different places to get to the diagnosis. He is now waiting for an appointment with a specialist at the QE hospital in Birmingham...
My partner has just been diagnosed with a Pancreatic Neuroendocrine Tumour (PancNet). While we're relieved that it's not the more aggressive exocrine type, the fact that it's rare and we're not near a specialist treatment centre is a worry. Still more...
Hi there I have just had a diagnosis from a biopsy on a lump in my neck. Am waiting for a CT scan for more information. David
I'm new here and have just been diagnosed this rare cancer of my Pancreas, the surprising thing is that my brother was diagnosed of it on his lung a few years ago and although not cured he is living with it thanks to medication, Is it Hereditary , does...
Hi. Just wondering if anyone has suffered with a rare endocrine cancer called Pheochromacytoma. I've now had it twice. The first time many years ago...a tumour on my adrenal gland and my second more recently with a tumour in my lung. To date I've only...
Hi, I was diagnosed with a tumour in my abdomen and had the tumour removed 3 weeks later, am now in recovery and waiting to get back to ‘normal’, still very tired and brain is not firing properly, but was feeling positive as was told cancer would not...
Hello Have recently been diagnosed and have completed a two week cycle of chemo tablets. Also had a tooth out and got to have another 3 out all connected to condition. I just feel sad and overwhelmed by it all. I have gone from being a strong independent...
Hi all, new to this so hope you will bear with me. Diagnosed with NET in colon and was investigated extensively and thankfully no spread found. Was told my diagnosis was early and the lesion is very slow growing. Have been told that for now it is a case...
Hi I have just been diagnosed with small intestine neuro endocrine tumour. I just can’t get my head around it! So scared. Never had so many overwhelming emotions. X
