Have had thyroidectomy and T1b papillary thyroid cancer found. In 3 weeks I have surgery for lung wedge resection for suspected NET. Very concerned about the recovery from the lung keyhole surgery and have allowed a month of Ld work - will it be enough...
After 6 scans endoscopies and blood tests I,m to have Distal pancreotectomy with poss splenectomy plus gallbladder removal. The last octreoscan lit up on the 30mm lesion in my tail so it has all the appearances of a neuroendocrine tumour. It seems focal...
I was diagnosed with breast cancer 14.11.22 & am now coming to the end of active treatment. Unfortunately I now have to face treatment for NET which were found by mistake when the hospital did a CT scan in the wrong place. I was told at the end of November...
Hello. My Mum has recently been diagnosed with a neuroendocrine tumour in her jejunum, spread to the liver. My Dad passed away in January - this has all come as a bit of a shock. Mum is 82 and has always been fit and well. She has just seen a nurse...
I'm joining this group following a diagnosis of a NET in my right lung. My diagnosis came as a shock as the tumor was discovered following an ultrasound scan for possible gallstones. I'm now recovering following a lobectomy via VATS surgery. I would like...
Hi, I'm a 36 year old male who recently got an initial diagnosis of Carconoid Tumour in the main tract of my left lung. I'm going for a specialist appointment on Sunday as the initial diagnosis was after routine medical screening for my new job...
I’ve had some investigations after a positive FIT test. I had a normal colonoscopy but I’ve steadily become more unwell. At my last appointment, the consultant asked me to do a 5HIAA test as I said I’ve been getting hot flushes, night sweats, nausea,...
Hello, My husband has just been diagnosed with pancreatic neuroendicrine cancer stage 1 3 x weeks ago aged 61. He thought he had flu over Xmas and was poorly in bed throughout Xmas n New Year. Otherwise he has never been I'll and was fit and healthy...
Hi I’ve just joined today. my mum was diagnosed with liver tumour e of of October but was told that was the secondary cancer and they needed to find the primary, at beginning of December I had a phone call to there was a surgeon in London who could...
Hello, new to this forum. My husband has a lung carcinoid, NET. It wasn’t found until stage 4 and had already metastasised to the liver and bones. He is on Everolimus daily. His worst side affect is edema and no treatment for that seems to work. Does...
