Hello, everyone. I’m new here, I was searching for a forum to find some support for my son’s new diagnosis. It’s been a crazy road that has lead to an unexpected, scary, and somewhat confusing diagnosis of a Neuroendocrine tumor…in his middle ear. He...
Hello, this is my first post and I'm not quite sure what to say. I've been having trouble getting the care I need post op, it almost feels like I'm not being taken seriously, so I wondered if others had experienced anything similar. im 33 F, diagnosed...
Hello all. just recently been told by consultant that shadow in my lung is suspected “well differentiated carcinoid” just at entrance to right lung. Discovered by chance as coughed up blood out of the blue and got CT scan. PET scan has shown no other...
Hi My Name is Michelle, I was diagnosed with a pheo, in 2017, I had a 15cm pheo removed and my left adrenaline gland. In March 2017. It spread to my right lung in 2020. Since then I've had 2x lung resections and a liver ablation. At the moment the cancer...
Hello, new to the group. I had an appendectomy April last year after ED admission with acute appendicitis. 4 months later got told out the blue that there was a 15mm NET attached. The hospital f***ed up and I slipped through the net (no pun intended)...
Hi, I was diagnosed with small bowel NET and had surgery 2 years ago. I started lanreotide 6 months ago and am struggling with side effects. How are others managing?
Hi I an having. Chemo and radiotherapy after having 50% of my liver removed Secondary in small bowl. On all sorts of drugs but so so tired all the time
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I've been having treatment for the past two years, firstly having the lower part of my left lung removed. Unfortunately I suffered a blackout at the start of treatment and it was decided that an MRI of the brain was in order! They then found a brain tumour...
Hello everyone, I am New Zealand based but originally from the UK so thought I would post here as the more global we get with our information sharing the better. I was diagnosed around Christmas 2017 when a small bowel obstruction was removed with a lot...
