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Hi, i have Myeloma and have been in remission since November 2023. Just lately I have been having terrible cramps at night in my feet, legs and hands. They co.e on without warning. When im getting in and out of bed, when im getting in and out of the car...
About three years ago I was treated for a tongue cancer and currently in remission. For the past six months I have been off work with anxiety and depression which is being treated with antidepressants and talking therapies. There has been no change in...
Hello folks I'm new here and would be grateful to know how people cope with fatigue and any suggestions how to counter it. After 6 months treatment I moved to a maintenance cycle on 1st July, treatment has been very successful but I'm experiencing severe...
Hello Everyone, I started finally The chemo on Tuesday, the 17th of February with the protocol that includes daratumumab, dexamethasone and Lenalidomide. I have a bunch of other pills that I take one to protect the stomach the other one anti viral the...
Hi all, It’s with such a heavy heart and lots of tears that I’m finally sitting down and writing this. After noticing a lump on my boyfriend’s head on NYE, he’d had a load of diagnostic tests at the start of this year. We didn’t expect anything sinister...
I have had a terrible few months. I went to GP in February this year with very strange neurological symptoms of burning numbness of the feet tingling across the back. She did loads of blood tests nothing much showed up. Because I had lost weight and...
I've read a lot of the diagnosis stories from members on here and have talked to other patients and it is clear how many of us have had a long period of treatment and investigation for one of the symptoms such as back issues before getting to the Myeloma...
Hi everyone. Vespa here. AKA Kevin. Not heard or seen much activity recently and just wondered how things are with people in the forum ? The extended heat I guess for us is tough? Not sleeping as great? Fatigue? Diet not the same as normal. Just thinking...
ive been taken off my lenalidomide treatment and soon to start belantamab regime reading the associated booklet is very scary anyone with any insights
I commenced Darzalex at first relapse January 2023. My main side effect was indigestion. I have suffered with reflux for years, but this felt different. Severe bloating, abdominal pain and no appetite. No respite despite experimenting with various antacids...
