I've read a lot of the diagnosis stories from members on here and have talked to other patients and it is clear how many of us have had a long period of treatment and investigation for one of the symptoms such as back issues before getting to the Myeloma diagnosis
I feel very lucky because our excellent local GP practice does proper 2-yearly health checks once you're over 62 (I think), and they include a paraprotein test in the blood test bank. So I went in 18 months ago, feeling fine, got the phone call the next day, saw the haematologist two days after that and started chemo 6 weeks after the health test, without ever feeling ill.
Was that very unusual good luck, or have others had their diagnosis from a routine test?
P
Hi padjo59
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
Wishing you all the best
Hi Windy,
Good luck with the continuing low level, and glad they got the diagnosis fairly early. I'm just surprised that so many people go through lots of treatment for things such as back problems before anyone joins the dots. As the blood tests are petty indicative - ie the normal level for paraprotein is zero - why don't they simply add that blood test when someone has suspiciously easy fractures or obvious bone pain? And earlier treatment always gives us more options. I'm currently having a totally normal life after my SCT. Actually typing this from a hotel in China! Which wouldn't be happening if they'd diagnosed me 12 months later.
P
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