Fatigue

Hi  Paul Kevin here,  AKA  vespa,     2.5 years post stem cell transplant,   in Remmision,  and no treatments at the moment for my MM,      i am,  assuming you have had a stem cell transplant,  and recovered from that?   its tough!

i think,  all of the  forums  will tell you Fatigue is   one of the main    symptoms that we all still have,  and of course we are all different,   with different  lifestyles,   i am 69,      in fact just a hour ago,  i had to leave my daughters BBQ   as i was so fatigued,  and some days i feel  strong and great.       health care people will check your blood  for Aneimia ,      Diet  and of course  Exercise,   i recently started  swimming again,     tough on my  breathing,  but i have now built up some   stamina,        i wish i could determine,  when its going to be a good day,  and    obv  a shit day!

i did find sometimes an afternoon nap helped my fatigue levels and  evening sleeps!  

tell  your GP also,   as they can get   blood pressure and blood tests done  very quickly ,

Are you on Lenolidamide for maintenance ?

Kevin

    Hi Kevin, thanks for your reply. I was deemed too old for a transplant and had the   IsaVRD  regime. First 6 weeks were tough but it got easier when it changed from weekly to fortnightly treatment. I'm in full remission now the treatment has been excellent and my breathing is pretty much back to normal. . I moved onto a maintenance cycle 1st July and I'm on that for a year. It's isatuximab every fortnight and Lenalidomide daily 3 weeks out-of four but it's half the dose I was previously on.

Your description of fatigue is almost exactly my experience.  I guess I've just got to adjust my life to take account of my new normal. but I'm hoping over time it will improve, I'm told it will take a year to get over the initial intensive treatment. The unpredictability of the fatigue is a real pain, so many times I have to cancel or postpone things. While I was on the treatment cycle I attributed it to the drugs but now they are much lighter its been a bit of a disappointment to realise its the MM. And patience is not one of my strong points! Onward......

Hi Paul, Kevin, I am dealing w fatigue too. It’s not terrible but just enough for feeling I have to push myself to do things one has committed to do, physical things, mentally I am sharp, in the first two months of treatment I was a bit foggy hmm. Now I attribute this fatigue that has started with my maintenance period to the diminution of steroids while carrying on with Lenalidomide. As I experience it’s the heaviest of all! Anyway I am in rural France and am going to push myself to do a little skirting paint that I have been avoiding for the last 3 days. Haha

Hi.  Carlos   It is not an easy path.  And with the heat we have experienced in the. U. K.  And Europe. Tougher.  Kneeling pads for skirting boards !  Painting.      Kevin