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Hi everyone, My partner has lived with myeloma since he was young, and currently going through a round of chemotherapy. I think because he's had this since he was young, he's very independent about all of it, and doesn't tend to what any physical support...
Hello everyone, I'm new to the group. I was diagnosed in March, following a fall which broke my leg. Chemo started in May, and is currently suspended due to side effects. I feel well, though, physically, but over the last week have struggled with the...
Good afternoon to all just wanted to get opinions on my fatigue I’m exhausted mentally and physically I was diagnosed with smouldering myeloma in January 2023 I’m not on any meds but I am monitored every three months with blood tests and a talk...
Hi all. A while since i have been on here. Its been a roller coaster this last 7 months. Fractured my back last November but my GP said it was a pulled muscle. Ended up in AnE in January and was admitted and started on Radar trial and Chemo. Unfortunately...
After three doses of Elranatabaman, I've developed very severe side effects. I wonder if anybody else has had similar experiences
Hi My husband has just been diagnosed with myeloma, I know there is a long road ahead as he needs chemo and stem cell transplant, he has fractures in his spine also. He has a pet scan on monday and another heart scan tomorrow cos there was something...
Hi All 135 days post SCT and just finished cycle 1 of consolidation treatment. All numbers have been in normal ranges since discharged but after the end of cycle 1 of 15mg lenalidomide, bortezomib and dex my platelets have dropped to 69 and cycle two...
Good morning everyone I lost height due to the MM and after diagnosis was referred to a back specialist, who I saw as well as starting the Chemotherapy. Followed by an SCT and now in Remission and on Lenalidomide. The back specialist said no further...
Hi everyone I was diagnosed with MM in May 2025. I have had Chemotherapy, SCT in early February, further Chemotherapy and I am now in Remission and started on the Lenalidomide (Day 14). I seem to be in a constant ‘panic’ about everything, especially...
Hi - I'm new here. I was diagnosed with myeloma in late January and I'm still getting over the shock. I'm in my 70s but up until late last year I was running regularly and playing badminton. I'm now having to get used to very limited activity as I'm tired...
