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Hello! Just wanted to say hi - supporting a parent with newly diagnosed myeloma. Will pop into carer forum too but wanted to connect with folks with experience of myeloma. Going into first cycle of treatment soon so any tips for staying sane very welcome...
Hi Guys I was diagnosed with Plasma Cell Leukemia in January 2025.I am currently on cycle 3/4 Induction Therapy and am looking at a SCT around May. Being a 56 year old female ,prior to diagnosis I was on low dose Hormone Replacement Therapy (HRT)to help...
Hi I’m not new but find it difficult to post I don’t know why? I have MM I have had treatment , 2 SCT & I am on maintenace drug Lenodinide. This past week I have had pain in shoulder, neck & arm pain/ache & is not getting better I struggle to find a comfortable...
Hi. Vespa here. A. K. A. Kevin. i have been on Lenolidamide for 5 months now. Due a severe skin itching reaction the constant reduced the dose amount from 8 mg to 4 mg tablets. This has helped but I still get itchy skin. I have tried antihistamines...
Hi my myeloma is back for the 3rd time. I can't face anymore chemo. I just want to die now rather than suffer.
Hi All , diagnosed with multiple myeloma in dec 23 , had a rough year in 24 , one to forget really , after several stays in hospital with very bad reactions to maintenance treatments & chemo l had my stem cell transplant in London in June , lm part of...
Hi. Vespa here. AKA. Kevin 5/2/25. Is 12 months post my auto SCT How am I doing ? I would say. Good to great ! Thanks to great care from NHS. and the hematology team at royal Worcestershire hospital i am on maintenance drug Lenalodamide and Zometa for...
Hi... my wife broke her thigh bone in November and this is when we found she has myeloma. It was a shock to say the least and it's rocked our world. She is alot stronger than I thought and was coping OK we have a 7 year old son so at times it's tough...
Hi that’s me a week in and after my second Bortezomib injection yesterday i can only describe my energy levels today as absent. I have felt like a zombie all day and just keep drifting in and out of sleep, I was advised by my Myeloma nurse that this...
Hello everyone just wondering if any of you lovely lot can help . How are you all responding to the treatment
