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Hi all I have both the above I was diagnosed after a bone marrow biopsy in Kings in august 2020 any one else got the same I have the Amy in my heart and muscles which is very rare in the muscle common in the heart me good top talk with someone thats going...
Hi everyone my name is Peter and have multiple myeloma have been like this for a long time luckily it’s not getting any worse have bloods done every 4 weeks then telephone consultation my lights are high but they seem to think it could be my level as...
Hi I’m a Newbie to the group with a recent diagnosis of MM I’m Edinburgh based and 54 and had been experiencing lower back pain for over a year and paid for private a MRI that revealed I had 3 bulging discs, so lots of pain relief meds and physio support...
Hiya All, Don't really know where to start. My mum is 79 had no symptoms just went for some routine bloods and then got a call on a Friday afternoon at the end of November saying to go to the hospital on the Monday and we were hit with the News she...
Hey everyone, I'm going in for high intensity chemotherapy and stem cell transplant a week on Tuesday. Just looking for advise, guidance anything really that might help me. I have an 8 year old son who won't be able to visit me for my full 3 week...
Hello everyone, I am 55, Early September, after a bone marrow biopsy I was diagnosed with Myeloma stage 1, (40% plasma cells). After seeing my Hematology to discuss the results, I was told that based on my early stage I won't be needing treatment...
Hi there I am newly diagnosed and need to choose between 2 treatment options. Has anyone got any experience or comments please? ps i did do another post yesterday but cant seem to find it
This time last year my mum was ill, we then found out she had multi myeloma. She has done initial treatment a stem transplant and then was having a break. I had my mum back. The treatment and transplant was cruelling. Her levels have not reached 0 but...
Hello. Has anyone else been on chemo Elranatamab. What side effects have you had. I have had extreme diarrhoea and vomiting after the first full dose last week. I am nervous about my second full dose later this week.
To all survivors out there i'd like to wish you a healthy and happy 2025. And everyone associated with MacMillan a very big thank you.
