My wife has myeloma

Hi.     Kevin here. A.  K. A.  Vespa   Sorry to find you here but you will get some good advice as people respond.     I have. M. M.     In remission from my stem cell transplant 12 months ago and doing great.      But. You are not at all selfish to ask for support and very difficult with a young family also.    First the worry about financial support    You may be eligible for a carers allowance called “ attendance allowance “.   Please google it and apply it can be about £400+ per month.      Next on the. Macmillan web site there are booklets about caring for the carer!    Without my wife’s support I would not be where I am      I had just retired when diagnosed. She also gave up her work to help care for me     I also have hip bone lesions which can make it hard to walk !     But doing ok    Your young son may also need some advice  !    At 7 years old he will not be sure what it means for  mum and you.    A charity my son worked for have great cancer tutorials on line that may help.  Called “. Camp Quality. “   It was in Australia but cancer has no boundaries.      The MM. medications are very good   But important to get you wife in good mobile health for the journey of treatment.     I underwent 4 course of treatment before my stem cell harvest and transplant.      Then 2 more post transplant.    I take a maintenance drug now and I have also an orthopedic plan to fix my hip     I  hope they can help her fix that quickly to carry on the. M. M.  Treatment plan.      I was able to drive myself to most of my hospital appointments 2x per week and also blood tests     We have 4 grown up children. It was very hard to tell them  and two live in Australia!    Every person with.  M. M is different on treatment and support needed    

I wish you.   Your wife and son all the best  and  Macmillan and  Anthony Nolan trusts can be a great source of support.      Kevin 

Hello there,  that sounds tough. I’m in your wife’s situation but only started treatment a couple of weeks ago. You’re not letting her down, what supports  me Is my partner doing the little stuff around the house making things run smoothly   -  Talking about feelings is not for everyone.  Your local McMillan Centre will run support groups for family But if you want your support more anonymous, their helpline is great easy to access

Hi there sorry to hear about your wife .It is a lot for you to take in you should be able to claim carers allowance it is roughly about £81 this will help I was diagnosed  last  feb  my problem was my back I started on a radar trial I  got a stem cell transplant in July I have one more cycle to get then I go onto maintenance drugs. You need a lot of support there will be good days and bad days my husband had to give up his job so it was hard going. You and your wife need to talk. There will be angry days crying days it is a lot to take in . You also need support so don't be afraid to reach out for help.

Thinking of you all .

Thank you. We are going to put in a Pip claim in soon..not quite old enough for attendance allowance:)

Thank you..its just the not knowing and hopefully I can continue to work

You're wife should be able to get a blue badge if she drives